Transverse Mylitis
 

Hi Everyone,

I am as my name implies I am a grandparent to 4 cuties. I also have Tranverse Mylitis, for right at one year. Having others to talk to about this is so nice, as you all know the Dr's just don't give out that much info.

I have been off and on predisone for the past year, mostly on. The dr's started weining me off over the last 2 months. Well to make a long story short, after 2 weeks off, I had to go back on it. Walking became so painful and the pain in my right arm almost brought me to tears. My question is, will the swelling always be there? As I said before it has been a year and my right side is still numb. (no improvement) as far a the numbness goes.

Thanks for your feedback.

Mommaw

Hi Mommaw. Welcome to NeuroTalk. This is a very caring and supportive community.

I don't know anything about transverse mylitis, but I did do a search for it on these forums. The only mention I found of it is in the Peripheral Neuropathy forum so I am going to direct you to that. Here is the link. http://neurotalk.psychcentral.com/forumdisplay.php?f=20

I'm so sorry to hear about your problems. Just hearing about the prednisone makes me shudder! I have taken that many times, and the first time I had to be on it for over a year (for my ulcerative colitis). It was hard to taper off of it because as soon as I'd get to a low dose the colitis would start to flare.

Anyway, I'm so glad you found us. :hug:

Mommaw,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring members here willing to help each other as they are able.

Yes I will agree with you grandkids are cuties. I have always thought that they were my reward for putting up with those bratty kids. lol Again welcome, looking forward to seeing you around.

Darlene:hug:

transverse mylitis
 

Hi:
I am now being tested for TM and am having a hard time with this problem. No one can really tell you anything about it. I am suffereing with blurred vision and some pins and needles and tingling in my legs. My toes also hurt. Would love to know how you ar doing. Hope you still come on this site as I see you last wrote in 2007.

Thanks.
Camille

Hi, Mommaw! :Wave-Hello: Welcome to NeuroTalk!

Hello and Welcome to Neurotalk - You will find many great and supportive people here!!

I'm so sorry for everything that you are currently going through:hug:

If you need anything, please don't hesitate to ask - I am more than happy to help you in any way I possibly can!!

Thanks and i'm looking forward to seeing you around the forum soon hopefully!

Alison

Hello Mommaw and another welcome to NeuroTalk here. Hope you make yourself at home and join in anywhere.

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