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-   -   Encouraging news (https://www.neurotalk.org/myasthenia-gravis/229818-encouraging-news.html)

southblues 12-12-2015 01:43 PM

Encouraging news
 
I have been taking cellcept for a little bit over a year now. I am really doing a whole lot better. I am able to work. I am not as strong as I would like to be, but I am really doing great.

I can walk, talk, see, swallow, and generally carry on with life. This is such an improvement from a couple of years ago.

My purpose of bringing this up is to tell the newbies out there that the may be a light at the end of the tunnel. Treatment really can work.

Lily7 12-12-2015 06:15 PM

Thanks so much for this news. I have been newly diagnosed and put on Cellcept -- for about two months. I was wondering if it was ever going to help. So far, nothing is better. This gives me hope to hang on. Thank you.

pingpongman 12-13-2015 03:56 PM

I had good results on cellcept also. I'm now reducing my mestinon and almost off prednisone.
Mike

Alberta Ron 12-19-2015 11:52 AM

Quote:

Originally Posted by pingpongman (Post 1188191)
I had good results on cellcept also. I'm now reducing my mestinon and almost off prednisone.
Mike

Cell crept seems to take a long time to work. It took about a year for me. I have reduced my prednisone intake by 95%. If I miss a mestinon it doesn't affect me

There is hope.

FREDH 12-19-2015 12:48 PM

Question about Cellcept
 
Quote:

Originally Posted by Alberta Ron (Post 1189230)
Cell crept seems to take a long time to work. It took about a year for me. I have reduced my prednisone intake by 95%. If I miss a mestinon it doesn't affect me

There is hope.

Have any of you tried Imuran. That was what I was given. Just wonder if you feel cellcept is better. Thanks for any replies.
FREDH

pingpongman 12-19-2015 11:20 PM

I was on Imuran for 12 months but it really made me sick. I lost 30 pounds. I couldn't go near a Wendy's.
Mike

Alberta Ron 12-22-2015 12:20 AM

Quote:

Originally Posted by pingpongman (Post 1189312)
I was on Imuran for 12 months but it really made me sick. I lost 30 pounds. I couldn't go near a Wendy's.
Mike

I tried but was allergic to it


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