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-   -   How do you do it? (https://www.neurotalk.org/parkinson-s-disease/191157-how-do-you-do-it.html)

aab45 07-09-2013 10:15 AM

How do you do it?
 
Getting out of bed has become a major challenge after 18 years with Parkinson's. To get out of bed, I have to be dragged across the bed to the edge, lifted up to seated position then I can drop my feet onto the ground and stand up. I repeat this procedure 3-4 time anight. Is there an easier way to do it. Thanks.

pegleg 07-09-2013 11:28 PM

It works!
 
I sleep in a lift chair now, so rising from a reclining position only requires the push of a button.

But this was a real problem at one time. There are a few things you can do first before getting into big expensive changes. First, wear silky pjs (or if you are a male, get some silky boxer shorts. ) They make silky sheets too, but beware! The friction of sliding around on that silk may start a fire! (Just kidding)
Avoid pillow-top or memory foamed mattresses, as they tend to "suck your body up."

Another easy modification is to get a heavy rope ( nautical or rappelling weight) then tie it to a footboard, if you have one; or to the frame of the bed. At the foot end. Put the rope between the mattress and box springs if you don't like a lumpy-appearing bed. And then tie a couple of knots about a foot apart and keep the rope near your side while you sleep. When you need to get up, pull yourself with the rope. It works!

There is assistive equipment you can order online or through a physical or occupational therapist. They make poles that reach from ceiling to floor that will bear your weight.

Always have non-skid slippers or socks on your feet if nyou will be stepping on a wood, tile or slick surface other than carpet.

Good luck and let me know how it works out!
Peggy

aab45 07-12-2013 07:06 AM

Thank you Peggy. I got silk bed sheets and I can slide my body easier across the bed. In the past, tried to sleep in a recliner chair (not a lift chair) but had to stop after a developing pressure sore which was difficult to heal. How do you protect against pressure sores. Thanks

pegleg 07-12-2013 03:08 PM

Hmmm?
 
Aab45

I hadn't thought about pressure sores because this chair is designed to alleviate on particular areas (usually the buttocks). The guy that sold it to us said that the chair cradles your body . The brand name is Pride, and insurance (including Medicare) reimburses you about one-third of the total cost.

However, the key to dealing with pressure sores is to move often - don't rest on the same areas for long. And if you do get a callous or scaly area, keep it clean and apply antibiotic or cortisone cream.
Best to you.
Peggy

aab45 08-31-2015 07:07 AM

Quote:

Originally Posted by pegleg (Post 999419)
Aab45

I hadn't thought about pressure sores because this chair is designed to alleviate on particular areas (usually the buttocks). The guy that sold it to us said that the chair cradles your body . The brand name is Pride, and insurance (including Medicare) reimburses you about one-third of the total cost.

However, the key to dealing with pressure sores is to move often - don't rest on the same areas for long. And if you do get a callous or scaly area, keep it clean and apply antibiotic or cortisone cream.
Best to you.
Peggy

Dear Peggy,
could you, please, share with us your experience with sleeping in the Pride lift chair. Is it comfortable. Do you sleep longer than before. Is it sturdy enough to withstand body moves while sleep.

I have reached that point in time where I am ready to give up sleep in a bed because of difficulties in getting out of it.

Thank you


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