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-   -   Spinal Lesions (https://www.neurotalk.org/spinal-disorders-and-back-pain/220107-spinal-lesions.html)

Bambi2015 05-10-2015 09:24 PM

Spinal Lesions
 
Hi I am new to this forum!

I need help! I'm in constant pain, always tired and extremely fatigued. I have been tested for Lymes disease- negative, fibromyalgia-negative. Had MRI of brain and spine. No brain lesions! Spinal lesions on C2, T5, and T8. lumbar Puncture negative for O bands. EMG abnormal results ( doctor didn't specify the abnormalities). All of my bloodwork came back negative for any type of vitamin deficiencies. Had. Two colonoscopies, last one polyps found- polyps sent for testing came back negative. I feel like from waist up everything is being squeezed! My arms go numb constantly, whether I am standing or lying down. The only time I'm not in pain is when sleeping! It's so very hard for me to stay active because at different times I am just completely exhausted and have to lie down to rest. Please anyone who can help, I am open to anything! The doctors keep giving me pain meds that don't help!! I have taken Norco, flexerall, and now just taking 10,000 units of vitamin D daily nothing helps!

trinityknolls 05-18-2015 10:03 PM

Possible Cavernous Malformation of the spine
 
OMG your symptoms sounds just like what I went through last year. I was diagnosed with a very rare condition, Cavernous Malformation in my spine, T3/4 to be exact. The tumor was in my spinal cord. The tumor started to bleed causing my right torso to lose sensation (felt numb) and progressively got worse, felt like I could not breath. The condition quickly got worse and loss of sensation radiated down to my pelvis. I was rushed into surgery as this condition causes paralysis. It is so rare doctors misdiagnose all the time. I would pursue a second opinion immediately.

Quote:

Originally Posted by Bambi2015 (Post 1141551)
Hi I am new to this forum!

I need help! I'm in constant pain, always tired and extremely fatigued. I have been tested for Lymes disease- negative, fibromyalgia-negative. Had MRI of brain and spine. No brain lesions! Spinal lesions on C2, T5, and T8. lumbar Puncture negative for O bands. EMG abnormal results ( doctor didn't specify the abnormalities). All of my bloodwork came back negative for any type of vitamin deficiencies. Had. Two colonoscopies, last one polyps found- polyps sent for testing came back negative. I feel like from waist up everything is being squeezed! My arms go numb constantly, whether I am standing or lying down. The only time I'm not in pain is when sleeping! It's so very hard for me to stay active because at different times I am just completely exhausted and have to lie down to rest. Please anyone who can help, I am open to anything! The doctors keep giving me pain meds that don't help!! I have taken Norco, flexerall, and now just taking 10,000 units of vitamin D daily nothing helps!


trinityknolls 05-18-2015 10:22 PM

I should also mention, Gabapentin was prescribed to me and was a life saver!!!


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