Lyme disease?
 

I have suffered from chronic bouts of Lyme for over 6 years. Need to know if anyone has any new ideas for treatment. Thank you, I am tired of all of the antibiotics!!!!!!!!:(:)

Welcome to Neurotalk.

You might check out the Lyme forum

http://neurotalk.psychcentral.com/forum91.html

Hi, just wanted to say Hi. and welcome to Neurotalk.

Hi and welcome,
 

I have a friend that has lyme. It took forever for them to diagnose his and he is still no farther along with medical help after about 7 years. That is a rough one but hopefully here you will find people who have it and they can give you some great ideals on how to live with it.

Hope you enjoy the group.

Ada

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene:hug:

New Member too!
 

HI, I'm not sure if this is the place to post a new member message or not; but anyway, I read an entry that was so similar to my situation, it was amazing. Eight years ago I was diagnosed with fibromyalgia; tried multiple treatments, then finally was talked into having surgery, a cervical lamenectomy on c2-c7. This operation about killed me. My neck has not been the same since, in fact, the neurosurgeon, Dr. Michael Rosner, was disciplined for performing this operation on 98 people. A class action suit evolved but I decided to opt out because there were 3 people who had become paralyzed from the neck down, and I was one of the lucky ones; so I felt I didn't want any money that could instead go to the paralyzed patients. Anyway, I got not relief from the fibromyalgia type symptoms. Next I was diagnoses with MS and treated for six years. I had to quit my jobs as school principal and adjunct professor and am considered disabled now. My symptoms continued to worsen; I continued to research the internet, trying to find out something, anything, when I ran upon a lyme disease list of symptoms, there were 28 items and they all described me exactly. I went to Pittsburg,PA to a Fibro/fatigue center, I was given a western blot test and the results came back positive. I now have a decision to make, should I continue with the oral antibody treatment in PA or switch to a SC doctor who is using long term IV antibodies, this treatment is controversial but I have talked to 3 people who say they have been helped tremendously by this IV treatment. If anyone has any experience with this type of dilema, I would greatly appreciate any advice, Thank you , Phillip Elliott