Support Group in South Africa?
 

Hi special Arnold Chiari Members.

I live in South Africa.

Do you know of anyone living in South Africa as well?

Thank You,

Take care

Samantha

South Africa
 

Hi

I live in South Africa, Limpopo have chiari malformation. :p

Great to meet a chiari friend
 

Hi

Great to hear from You Nicci

I too live in South Africa, Johannesburg.

How are You coping with Your ACM symptoms and condition?

Would love to hear more about you and what you have been through.

Have a great eve ahead.

Take care

Samantha

Sam
 

Hi.


Well I am doing ok. Just a problem getting medicine for these headaches. :eek: We are not so lucky as the people over seas.

Had the decompression, Dr. J. Steyn at Wilgers did the op. Help me all the way but last year said he has nothing more he can do for me.

:confused:

Guess its just how it is.

Wow someone in SA with Chiari:):p

Hi,

So glad im not alone!

I was diagnosed 5 years ago, Type 1 with a 7.2mm protrusion.

I was on strong pain meds for a year but have been going strong without them for 4 years apart from over the counter pills. I have been suffering with bad headaches the last 2 months and its just not going away! I have made an appointment but can only see the doc in 2 months.

How have you been coping and have you gone for surgery?

Take Care,

Angelique - SA

Chiari
 

Hi Angelique

My wife has been diagnosed with a 5 to 6mm Chiari by DR Tuewen at the Olivedale.

Would love to get in touch.

THERE IS ALSO A group on FB for sm in s africa which also has to do with chiari

Syringomyelia - South africans living with SM

Hi Samantha.

I live in kzn. Also Chiari type 1. Have decided against surgery for now.

Hi I am from Vredendal (West Coast) and have Syringohydromyelia of the cervicothoracic junction, C7 through T2 - don't have any other info and don't know what it is. Specialist is not concerned, I need to go back after 3 months.

Hi, are you still around on this group?
 

Hi, are you still around on this group?