Hello I am a new member
 

Hello,
I am new here. I have posted in social chat,but never on this site. I have RSD in my upper and lower extremities and I developed migraine headaches. I have had RSD for 24 years. When I was 13 I developed RSD in my upper extremities from a medical test. I had it under control,but it never went totally away. My doctor thought when you have RSD in younger years that it would go away. When I was 21 my RSD had spread to my lower extremities which I have no idea what caused it do that. I was 29 when my migraines started,but my doctor said looking back you have had migraine headaches for a long time just never diagnosed properly. I am now doing Tai Chi for my RSD and migraine headaches. I have found it to be very helpful. My migraines are doing better,but I still don't have them under totoal control yet. I hope soon my migraines can get under better control. I have enjoyed looking at the great sites that are posted in this community. It seems to be a really nice group of people. Thank you for letting me join the group.

LMJunior

Hi,
I am sorry you have RSD but it's great to meet you. I want to welcome you here. Everyone is kind and caring. Hugs, Roz

welcome!
 

Have you tried Topamax (or is it topomax? I can never remember...) anyway, it is topiramate... It helps my pain-- plus I have not had one migraine since I started taking it. It is used as a medication for migraine prevention I believe.

I cannot take neurontin or lyrica. Topamax works better for me than either of those did when I was trying them. I would hate to live in my body if it was not for this medication!

You have to work up slowly on it, and sometimes have to be on quite a bit to get relief. I fluctuate between 150 and 250 a day depending on how bad I am.. have been as high as 300, but my limbs were getting tingles that were quite distracting at that rate.

welcome again to the forum.

Jules

Thank you
 

Hello,
Thank you for the warm welcome everyone. I have tried topamax and neurontin and I couldn't tolerate either one. It gave me so much pain in my eye that I had to stop. My doctor told me I can only tolerate low dose medicine. Medicine does work for me but only in low dose. I am looking forward to being a member in this group. Take Care everyone

LMJunior

Can you tell me what kind of benefits you get from Tai Chi?

Do you have any problems with range of motion due to upper and lower extremity RSD?

Thanks in advance

Jasmine
(Jas)

PS welcome !!!
I am new too:)

:Wave-Hello: hi jasmine. welcome to Neurotalk.

love your name. i have a grand neice named jasmine. :D

Hi to both of you!
Glad you found us.
The forum is growing so much and so many new members!
To bad we have to meet due to pain though.

Welcome! :)

I wanted to say that I have range of motion problems real bad in my right shoulder. I was able to lift my arm all the way into the air, and then 3 days later I could NOT. That was back in November. I have yet to get my arm all the way up on my own (my physical therapists can, but I CANNOT... my muscles are extremely weak, and the RSD pain prevents me), but I'm working on it!

I have severe mobilty issues in my shoulders and neck (and a couple of other areas:D ) .
I would love to be able to do something like Tai Chi but I am really curious as to whether my body would allow me to do it :confused: .

That is why I am curious as to how LM Junior got started ..continued etc.
What kind of pace he/she is on .


Thanks for the welcome and thanks for liking my name .
I like it too:)

Jasmine

Tai Chi
 

Hello,
I use to do a lot of aerobic exercise for my RSD,but since I developed migraine headaches I could not do aerobic anymore it was to forceful. My doctor who treated me for my RSD said that Tai Chi is very gentle moves. It's says for any age group. I have two shoulders that sublux so I have to be very careful. Its all standing and no sitting on mats which I could not do because of my RSD. Tai Chi is suppose to be a good cardiovascular exercise and its so gentle which is great for me. I try to do it everyday for 30 minutes. I have looked it up on the internet and it has so many health benefits. After I do the Tai Chi I feel very good. Tai Chi has been the only exercise I can do now that doesn't bring on a migraine. I am so happy that my doctor recommended it to me. If I have a bad migraine or I don't feel good I won't do it,but I try to get back to it as soon as I can. I would always ask your doctor for their opinion about the Tai Chi. Take Care I hope everyone has a pain free day. Take Care

LMJunior