Hope I'm in the right place
 

I was diagnosed with fibromyalgia in 2006. At first I was being tested and treated for possible MS. I'm still not sure that there's not more to this ms thing. They are treating me for neuropathy in my legs, but I don't understand how fibro can cause neuropathy. Does anyone else with fibro feel like they are vibrating inside?

Hi Leslie! You are in the right place. I saw your intro earlier, but just want to tell you again, that you are NOT alone. FM is painful and downright miserable. Do you see a Rheumatologist or a PCP??

I have a Rheumy and he is wonderful at treating my sx's. Unfortunately, there isn't a pill to take away the agony of FM, but there are meds to help w/the sx's. Hang in there and welcome again.

Hi! I'm new-ish myself. You're in the right place.

I've been tested for MS on three separate occasions but am now reasonably positive my screwy symptoms are caused by a combo of Sjogren's and fibro. The problem with MS is that the symptoms can resemble many ailments, including fibromyalgia, and the onset of your symptoms can precede positive results on a test by years. So you could have just fibro, fibro and MS, or something else causing your neuropathy.

Fibromyalgia can cause some really weird sensations. I haven't experienced the vibrating feeling, but I do have lots of uncontrollable muscle twitching (which probably isn't the same thing at all).

Hope you have found a rheumatologist who will help you out. I moved recently and am searching for a new doc, not fun at all.

fanfaire
:cool:

Yup you are in the right place alright!
I used to get the all over vibrations...very uncomfortable. Now I am on medications to help with that.
FM can cause neuropathy because the muscles will compress the nerves causing things like sciatica, piriformis syndrome and peripheral neuropathy.
Unfortunately its symptoms like this that causes doctors to poke and prod for MS and other illnesses.
You are not alone in this and welcome.

Thanks for your support
 

Its good to talk to people who know what I'm going through. I'm seeing a neurologist for my fm. He keeps trying to control my pain, but I know that there is nothing that will cure it. I've read where some meds help people, but they haven't done much for me. I just keep hoping some day that one will work. My best friend has ms and our symptoms are the same, except she can't walk without assistance. I can walk on my own even though my legs get weak and heavy.They did find one scar on my brain mri, and I have optic neuritis in my right eye. I am thankful that I wasn't dx with ms, but it's always in the back of my mind,what if it is?
:grouphug:

buzzing
 

you said "They are treating me for neuropathy in my legs, but I don't understand how fibro can cause neuropathy. Does anyone else with fibro feel like they are vibrating inside?"
I always have felt this way and wonder if i didnt always have neuropathy instead. i had foot surgeries on my nerves and that is what started my buzzin in my legs. then i had prolotherpy shots and they inflamed my nerves even more and crippled me.
you ask a very good question. i am being treated for neuropathy now too, and yet some docs say it is fibro. i would rather it were fibro as i think we will eventually find a way to cure the fibro.
how and when did your legs start buzzing?
steff

My legs started buzzing about a year ago. First it started feeling like they were moving when i was sitting still, and then my whole body started feeling the same way. In August of 06' I was tested for neuropathy, and they said I didnt have it but, three doctors have told me it sounds like neuropathy since then. They've put me on cymbalta for it and I take three or four other different meds but nothing seems to work. I am sorry to hear you have had some much trouble, I hope it is fibro too. Maybe soon they will find a cure.

fibro/ms question
 

Hi, I am new here also, almost 4 years ago a rheumy dx me with fibro...then sent me to a neuro to check about ms.....after this length of time and many many doctors later I was again dx with fibro last month....this dr told me fibro "goes away" when a person is 50's-60's, did not give meds for it and told me to be glad I was still working full time so the job could take the fatigue and pain and what ever other symptoms were going on, OFF OF MY MIND. :eek:
Needless to say I didn't go back. This month I am going to a new neuro, so we will see what he has to say about the neurological symptoms that are happening. The mri that was done in 04 was looked at by 2 neurologists and one neuroimmunlogist....with 3 different interpetations.
The first one said possible MS, the second said it was completely normal and the last one said, not normal, 10 lesions in the frontal lobes, but he didn't think I had ms, he found my cervical stenosis..and I think he just stopped looking after that. :rolleyes: I had my neck fixed by my neurosurgeon in 06. Love him....After a nice heart to heart with my neurosurgeon, he suggested I go to another neurologist.
Yes, the cold does make me hurt more, well, everwhere. But the heat makes me sick, weak, tired, can't move, migraine....etc...
Take care everyone.

buzzy feelings
 

Hi again, boy, I really missed the thought I had last time I posted here.
yes, my body feels buzzy at times.???:confused: Not sure why.
It is disconcerning, to feel all of these things that are not right.
Update on the neuro appt I had yesterday.
He was very nice, able to converse on my level, I was impressed, looked at the MRI I had in sep 04,,,showed us where the "spots" were, took lots of notes, read what I had written about what was going on, told me he wanted to check my MRI on head and neck I had done in 4/06, to compare and would be calling me with something on Thurs....:D Finally someone willing to check into what is going on. It is somewhat of a relief.
I hope things go better with you.
Geri

I too had PN...also have FM.
 

I too have FM...I had Periheral Neuropathy as well....an EMG and NC test proved I had moderate level.
I also had very bad fatigue...unable to function or get out of bed.
It all began with muscle weakness, twitching...then years later the PN.
I researched then found RoseB here on Vit/min def forum and she taught me about B12 deficiency.
My doctors told me was NOT my case...but it was! Glad I didn't just behave like good little patient, just take their meds!...I'd be much worse or dead!
Only God knows...but after supplimenting a few months, my EMG and NC test were back to normal and my feet and hands no longer burned like they once did.
So learn all you can about B12...Rose is the expert here on this subject,
here's a link to her web page...she's a very wonderful helper, and very knowledgable...most doctors don't know a lot of what she knows. is sad!
http://roseannster.googlepages.com/home
I'm so glad I found her and listened to HER instead of my doctors who told me to just take their meds...that I did NOT need just vitamins...whew!
They were sooo wrong!
There was a story about all this on Mystery Diagnosis, Discovery Health channel...about this woman who suffered 12 years from Neurological problems, non of the doctors helped her, she just suffered.
Finally a smart doctor started her on B12! This cured her! wow!
Is same story as mine. I have it on DVD as I downloaded the story.
If anyones interested in this....send me a PM...to request one.
Please..PM me...I may not check this forum back for some time.
Blessings, cheryl
PS,,,read my story on the vit/min def forum here on NT....here's a link to it.
http://neurotalk.psychcentral.com/sh...ad.php?t=19739