Newly diagnosed MG non musk
 

Hi, my name is Dan, an outdoorsman construction worker type, who just returned home from icu being just diagnosed with MG and after 9 Plasmapheresis treatments to grasp the ability to breathe and swallow again. lol that seemed long winded.

Anyways, so far I am good spirited and feeling a little better although the diplopia causes some writing issues, there are benefits at times.
Anyways, the symptoms started abruptly about a year ago with double vision and have intensified to weakness fatigue, slurred speech, breathing issues, inability to swallow, choking, vomiting etc….
Now I am trying to learn what exactly I have, since my doc was not very coherent and transferred me to another I can’t afford.
All I know is it’s “the rare type MG non musk”….. says there is not much paperwork on it, a bunch of trial and error stuff. Who knows? Been a week since my last plasma pher treatment and it’s a mixed bag.
Anyways, any and all help in understanding about it is appreciated.
I should note, I am a very strong Christian and either way it works out I am in good hands.
Second note, I had to add Plasmapheresis to my spell check. Must be rare.
:winky:

Welcome imdan. :Wave-Hello:

Great to meet you!!