PP multiple sclerosis
 

All you PPMSers! See sticky, post, tell them we're here!!!!
OK. I'm a little bit of a rabble rouser (sp?) - but let's make our voices be heard (I'm exhausted now - need nap)

You SPMSers too! Add your voice.

Wait wait, what about the weirdos like me??

I am no longer considered RR, it is definitely progressive. Does not respond to steroids which indicates a lack of inflammation ... which tends to agree with a PP dx, BUT... it's only been a year and you did have that 2 months where most of your sx went away... except those two which steadily increased each day until new things started to happen, so it could be SP but then again that should have responded to steroids.... and none of the MS treatments have done anything so far, other than to make the MS get mad and multiply...

So the bottom line is... You are no longer considered to have any relapsing form of this disease... but we don't know what to call it.

It's weird I almost DON'T want to know at this point... but not knowing is horrible. Not that they could do anything different for it either way... :confused:

Weirdies always welcomed in my world. Almost SPMS sounds OK to me. Us PPMSers and SPMSers tend to not be prejudiced!!!!!!!!

My right elbow pain that made me cry at night is gone (was around a few nights but never returned), pain in shoulder and side of back gone(??) with MS, anything can happen. Never enhance but MS never follows rules!

Bumping this up again.

Bumping up

Keep on bumpin or kickering

Duct-taping this to top. jmiller, are you PPMS or SPMS? Post on PPMS/SPMS even if you're RR so we have a chance at getting a forum of our own (size or numbers of participants does count). Come say howdy and give some duct-tape wisdom. Ever use WD-40?

I don't understand?? Don't you have a sticky at the top of the forum?? :)