A Thankyou note for Nick Nelson author of "Monkeys in the Middle" @ Neurotalk PD
 

Dear Nick Nelson,
I am a Parkinson's sufferer...as your book's first Chapter's quote from
James Parkinson's essay on the shaking palsy so elegantly put describes our illness -

The unhappy sufferer has considered it an evil from the domination of which
he had no pospect of escape...

I am very sure this escape was provided~ yet justice was not served to the
patients - & civility was not shown by Amgen... human they knew not what humanity should have done.

I want to "Thank you" for having the courage to write our story humanely...
and truthfully...


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http://jama.ama-assn.org/cgi/content...e2=tf_ipsecsha

Paging Nick Nelson
 

Nick Nelson, where are you? Could not reach you by your e-mail address on the site about Monkeys in the Middle. Google is strangely unclear about you. Your book is not available on the Canadian Amazon site, so I ordered one from the USA site. The 7 reviews on the USA site are 100%. I put a link to your site on my site, and put the cover of your book on my site, but I actually don't know if you are receiving any of this.
As the Baby Boomers retire, there are some estimates that the number of people with Parkinson's in the USA will increase from 1,500,000 to 8,000,000. And that's just the USA; I personally know one PD neurologist from Shanghai who says that as the Chinese population ages, they expect 30,000,000 Parkinson's patients. There will be a tipping point, a critical mass, at some point. It is a situation that has to change and can be changed.
The story of the Amgen savagery is being passed down from older PWP to the newly-diagnosed. We will keep this story alive. It has not been forgotten; the story is spreading more. How many more copies of your book are available? Seem to be none in Canada; Amazon USA scares me by saying "3 new, 3 used available".
Nick, are you okay? We send thanks and gratitude for the immense time and effort and humanity you spent on that book. Come out and take a bow so that we may applaud and cheer the courageous work you did. You ripped off the lid and shone a bright light into a very dark corner - and that is a lifetime accomplishment that should make you very proud.

Nick Nelson, we salute you
 

Nick Nelson kindly and elegantly replied:
Bob,
Thank you for getting in touch via the Monkeys in the Middle website. Let me know if you have any trouble getting the book up there in Quebec.
I've just begun my third and final year of law school at the University of Virginia. Eventually I would like to return to journalism to bring to light stories like the one I tried to tell in Monkeys in the Middle. For the near term, I'll be practicing law in Dallas, Texas.
Thank you for your kind words. The book was truly a rookie effort, but I was glad to do it.
Best,
Nick
Nick Nelson
University of Virginia School of Law
Class of 2010

And I replied to him:
Nick,
So glad to hear from you. I got worried that your great effort wore you out; or that the perps had you legally cornered somewhere.
A rookie effort? Wow! A great accomplishment.
I put the cover of your book in Chapter 22 of my free on-line book (by the way, the book is open to you if you want to do a story about doing the story, or what you think about it today, or who you met doing the book….. or anything you want to write…) I bow down to you.
What was done to the Parkinson’s volunteers will not be forgotten - and your book makes sure of that. This story is not over.
With gratitude and admiration, we salute you.
Bob Dawson