Palindromic rheumatism
 

Hello to anyone who takes the time to read this post!

I am a 47 yr old mum in the UK with a longstanding diagnosis of ANA neg Lupus. This has recently been revised to UCTD/SLE sub phenotype. I have recently stumbled upon Palindromic Rheumatism on another forum and would be so interested to hear of anyone else's experience.

I have no antibodies to anything, just low C3C4 and leucopenia with intermittent savage attacks of pain, redness and swelling on knees, fingers and wrists primarily. These attacks start dramatically, will reduce me to tears but are self limiting over the course of hours, days or weeks. More recently I have been experiencing muscle weakness, ptosis, resp issues, nasal and oral ulcers, burning nerve pain during flares so it seems likely that I do have some overlap with Lupus but no consultant at any point in the past 25 years as ever mentioned PR.

Hope someone can advise on whether I should suggest this to my Rheumy. Many thanks Clare

I talked with one of my colleagues (a clinical immunologist) about this.

She recommended this UK-based site as a source of information about palindromic rheumatism: http://www.arthritisresearchuk.org/a...heumatism.aspx .

Thank you for your reply Kiwi33. I have looked at the link you sent and its really helpful. It would seem that my current treatment is probably appropriate regardless of the title and there is perhaps nothing to be gained by discussing it with my Rheumy.

Thanks again, Clare