huge spinal cavernoma hemangioma on my t9
 

I have a spinal cavernoma the size of a marble. Ive already lost the use of my left leg,starting to have same symptoms in right leg. Expected to have surgery December 2013 so very scared. I have a 20%chance of walking 80% chance of being completely paralyzed, but without the surgery it will progress to where I'll be paralyzed anyway without having a chance to walk at all. That little 20% is all I have to hope for:(

Hi Shelley
 

I just read your other post. Let me know the date of your surgery and I will pray for you. Don't listen to negative stuff. I am going to bet on the 20% that you will be one of them and be OK. Have you gotten second and third opinions? Do your trust your Neuro surgeon? That good communication between patient and doctor is essential as you face this. I am glad you came here Shelley. Many of us have serious spinal issues as I mentioned, all of us will be in your corner.

I know you have a very serious condition. Just believe in the hope factor, and we all will be thinking about you. I was frightened too Shelley, and I don't think I could have gone through what I did without the help I received right here.

I am here to listen anytime. ginnie:grouphug:

Nice to meet you!!
 

Thank you,so very much. I've had no one to really talk to that has any type of situation like mine. It's like flying blind I guess. Sure I have support at home but it's not the same. I never know what to expect next or how to react. All the things I have to rely on my husband to do because when I have my surgery he's gonna have to take over my roll to and I honestly don't think he's ready to handle anything like this. I will keep y'all updated. No I didn't get any other opinions, it was pretty clear on the MRIs how big it was and why it needed to come out.this neurologist is better then the one I have to see for my brain tumor. He completely looked me over and still wants me to have more MRIs to keep check on it's growth till I can get my surgery. I really trust him. Plus he's worked with other family members. Still though I don't trust anybody's hands cutting on me especially a surgery like this one. Please if y'all don't mind send me a friend really request if you can. Haven't really figured that part out yet and don't know anyone. Thank you.

Keep us up to date.
 

I understand about the faith part believe me. My husband is accepting it better. He loves and cares about me so much. He's so scared of losing me, it makes him so mad at everything around him. He wants to be my hero,and I love him so much for that. If he could understand how safe he's always made and still makes me feel safe. I think it's harder to watch my family go through this then it is accepting what I'm going through. I love them all so dearly. It's so hard not to expect the worst. I'm on so many pills and I haven't even had the surgery yet. Sometimes I get so mad at everything around me,then I I get really ticked at myself,even though I know I have no control over it and knowing that even makes me madder. This just bites all the way around .....