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-   -   Non-Motor Symptoms of Parkinson's Disease (https://www.neurotalk.org/parkinson-s-disease/150878-motor-symptoms-parkinsons-disease.html)

imark3000 05-25-2011 07:57 PM
Non-Motor Symptoms of Parkinson's Disease
 
Were you asked by your neuro about sleep, breathing, constipation, swallowing, speech, etc.? My neuro did not !.
Imad
http://parkinsons.about.com/od/signs...a/Nonmotor.htm

paula_w 05-26-2011 06:35 PM
i don't know about you all....
 
:eek:I sent this to my family. They forget sometimes or at least mine does, does anyone else's? ha!

It's pretty thorough thanks Imad! adding i think there are best practices recently written for doctors to ask at appt intervals. does anyone have them?

GregD 05-27-2011 10:10 AM
Quote:
Originally Posted by imark3000 (Post 773736)
Were you asked by your neuro about sleep, breathing, constipation, swallowing, speech, etc.? My neuro did not !.
Imad
http://parkinsons.about.com/od/signs...a/Nonmotor.htm
Yes I was asked those questions by my doctor and Im asked everytime I am in to see him.

lindylanka 05-27-2011 12:51 PM
I wish I could have persuaded any of the the doctors I have seen to ask me those things. After 8 years they are still looking for my missing tremor. They mainly say 'What can I do for you today" as if I was looking for a new haircut... and are not pleased at all if I want to tell them that I am now falling a lot. Every time I get to see a different one I get a talk on sinemet toxicity, despite having been on a stable low dose for years. I tried to raise the issue of sleep recently and was offered an anti-depressant instead of a discussion of how it affects me....

More interested in their vision of PD than my vision of trying to survive it......

We do have a best practice guide, I guess they just haven't got time to read it.....

paula_w 05-27-2011 03:59 PM
lindy
 
Quote:
Originally Posted by lindylanka (Post 774143)
I wish I could have persuaded any of the the doctors I have seen to ask me those things. After 8 years they are still looking for my missing tremor. They mainly say 'What can I do for you today" as if I was looking for a new haircut... and are not pleased at all if I want to tell them that I am now falling a lot. Every time I get to see a different one I get a talk on sinemet toxicity, despite having been on a stable low dose for years. I tried to raise the issue of sleep recently and was offered an anti-depressant instead of a discussion of how it affects me....

More interested in their vision of PD than my vision of trying to survive it......

We do have a best practice guide, I guess they just haven't got time to read it.....

some make good dbs salesmen but to them it is the only option. they don't talk about clinical trials so what else is there?

d0gma 06-16-2011 04:52 PM
All I was ever asked is did I cry sometimes. Yes. I was going through a divorce but feeling better than I had in years-empowered. That last bit never made clinical notes and was used by the court to not allow me to speak since I was obv suffering depression. My long term psychologist testified I was not but he who can pay the better attny prevails. Still appeallung that. Not the first time inaccurate clinical notes had very bad effect. It pays to request ur records periodically.


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