New here
 

Hi! I'll try to make this post short, although my journey has been long. I've had double vision for 7 years now. I saw a neuro ophthalmologist who initially thought it was for sure MG. All testing at that time was negative.

In the past year, my double vision has not been helped by my prisms. Several changes in prism prescription, but nothing that consistently helps. Eye doc saw variation in measurements at different visits and encouraged me to try to seek out an answer again. I've always noticed a significant change in the double vision with any exertion.

I saw a pediatric ophthalmologist today regarding my difficulty with near and mid-distance vision. He is referring me to a neurologist for further investigation of MG. Says it clearly is not a congenital nerve palsy (as I have been told for years). Mentioned that it likely could be ocular MG.

I'm not sure if I'm ready to start seeing a neurologist again. Sometimes felt as though I was crazy as symptoms would come and go. About 6 years ago had extreme muscle weakness, but that eventually went away. Have continued to have a lot of muscle twitching in my legs. Is that associated with MG?

I'd appreciate any suggestions or advice. Thanks for your support.
Cate

Hello and welcome to the best place for answers and support.

If I were you I would call around to all your local Neuro's and ask them if they are fimiliar with MG, that is how I found my current Dr. To many times and I believe this is true for all of us here, Dr.s make us feel that it is all in our head. DO NOT allow that to deter you!

YOU know what is right and wrong with your body, so fight for an answer. We all have different levels of MG meaning it effects us all in different ways on different days.

I hope you get the answers you need. Go through the posts here and you will be amazed at what you learn.

Hi Catie - welcome to you!

I would definitely pursue with a neuro - but agree that you need to find one who has experience with MG. Perhaps try your local MDA organization to see if they could steer you toward a neuro that they know has MG patients.

Let us know how it goes.
Sue