NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   My First Thread (https://www.neurotalk.org/scs-and-pain-pumps/161647-thread.html)

lynn1667 12-05-2011 03:48 PM

My First Thread
 
This is my very first thread~~yea me!! I have been reading the logs about the SCS and how successful or unsuccessful whatever the case may be. I just wanted to thank everyone for their true comments about the procedure. I have had the trial-didn't really like it, but I thinking the real stimulator once it's in place will help me. I see the doctor on Monday December 12th to get more information. As I posted before does anyone have any helpful tips of what to ask the doctor? I have multiple surgeries which I ended up finally with a fusion on my C2-C6 and L4-S1. That sciatic nerve just won't settle down which brings me to have pain all the time. Thank you for this site~~I do find myself reading and searching more comments all the time.
:yahoo:

Ananimity 12-05-2011 07:45 PM

Hi Lynne
 
Glad you found this forum! There are sho many helpful and supportive people here. For me, the trial showed me that the stim is a tool, that allowed me to move easier with much, much less pain. I think the physicians look for over 50% pain relief before they will implant one. Good luck to you:)

Mark56 12-05-2011 07:54 PM

Welcome new threadster!!
 
Dear Lynn-

Questions to ask the doc...... If they aren't lost in Rae's left pocket, I might have a few around here.....

BTW- congratulations on your new thread.. before you know it you will have gone from collecting threads to weaving fabric to assembling quilts!! Amazing how that works!

I found a few in the linty corners of my storage........
You mentioned the trial would be an out-patient procedure. Is it performed at the Belmar surgical center and do you insert the leads?

I spoke with one of the ANS patient ambassadors, and she described the original plan had been to leave the trial leads inserted for one day but that she elected to leave them in for five days to give the trial a thorough go. Do you allow the leads to be left in for five days, and if you recommend otherwise, what is your recommendation?

If the trial is successful, how long must we await the ultimate procedure for the implant?

I was told that post surgically, the patient should significantly limit their movement because the leads are at risk of loosening. Is this true?

Would the implant, if done, be of the EON transdermally rechargeable unit?

Reading and viewing the material, we understand the current technology is specified with a hope for a life up to ten years. Since the battery life issue is technology which seems to have been taken from the longstanding cardiac pacemaker technology, is it known how long the battery life is expected by existing evidence, or is it more a hope?

The patient ambassador spoke of recovery, beyond incissional pain, as a process which was several weeks in duration as opposed to the many month recovery she endured in laminectomy. She said the most common need is to recognize the need to wait out the formation of scar tissue to hold the leads secure. Is scar tissue the real security in holding the leads fast?

Viewing the materials and video, we learned the leads/paddles are secured to the spinal cord and that there is risk of paralysis, can you speak to the manner in which the leads are secured and to what tissue? Can you speak to the risks of paralysis the fine print on the video pointed out?

The materials show a variety of leads which are part of the product for implant. Are all of the leads/paddles used so it is a once in a lifetime implant, or are the leads only inserted in my case in the lumbar spine?

I understand the unit may be used as long throughout a day as the patient dictates in conjunction with the doctor and ANS, is the use a 24/7 proposition, or would I be limited in use as I am supposed to be with the interferential neuro stimulator? I currently use it from 3 to 6 hours per day.

Maybe these will help you form questions of your own.....
Thrilled for you,
Mark56:grouphug:

Rrae 12-05-2011 09:04 PM

YaYY Lynn!
 
Welcome to the
http://dl8.glitter-graphics.net/pub/...auxjmxi54l.jpg !!
Before you know it, you're thread will be up to 800 posts like Mark's! :D
NOW you must learn the SECRET HANDSHAKE! :cool:

:hug: RAE :hug:

Mark56 12-05-2011 10:35 PM

Oh Me Oh My
 
Already 800,,,,,, pretty soon the great grand poohbahs will shut me down for reaching capacity!!:eek::eek:

Well, I'll just have to post on Lynn's thread when that happens..... Well Lynn, are you and Rae getting squared away on that secret handshake? Funny, I just had a thought....... no, I better not........ oh why not...... So, whaddya suppose would happen to our devices, if anything, if we were actually HAVE a BBQ at Pooh's and all be in such close proximity to one another? Do you reckon we would collect an extra Shock Value? That would be interesting.

Well, maybe not as interesting as Rae teaching the secret handshake.


Or Saffy showing the flippin around of that battery emplacement.


Or..... I am fresh out of oars, or was it ors, or ores, or have I gone :Crazy 2:
Yeah, for sure, having the flu, we decided after a family conference that is what grabbed me, I have flipped a gasket from confinement,
Let me outta here!
Mark56:eek: No flu shot next year for me......

Rrae 12-06-2011 01:46 PM

Super-Sonic Cyber Blast!
 
Quote:

Originally Posted by Mark56 (Post 830179)

Well, I'll just have to post on Lynn's thread when that happens..... Well Lynn, are you and Rae getting squared away on that secret handshake? Funny, I just had a thought....... no, I better not........ oh why not...... So, whaddya suppose would happen to our devices, if anything, if we were actually HAVE a BBQ at Pooh's and all be in such close proximity to one another? Do you reckon we would collect an extra Shock Value? That would be interesting.

Mark56:eek: ......

Yep, that's EXACTLY what would happen
if we all DARED to come that close in contact....
.......................http://dl8.glitter-graphics.net/pub/...hd0k4h1hxu.png
I sure as heck wouldn't want to be the one to have to pick up the aftermath of THAT disaster :eek:

Mark56 12-07-2011 12:01 AM

You are SO slap your leg FUNNY!!!
 
Yep Rae, if there is anyone who can put a smile on a face in this precious space, it is you!

Yep,
Mark56:D

lynn1667 12-07-2011 12:38 PM

I'M ready for the SECRET Handshake :D

Rrae 12-07-2011 05:34 PM

http://dl.glitter-graphics.net/pub/1...phuo9t6ad0.png

FIRST you have to wait for the dude disguised as a DUCK!!
..................................................http://dl9.glitter-graphics.net/pub/...edhyf2xmf8.gif

Lisa in Ohio 12-17-2011 12:25 AM

My word! We could also all become magnetic and stick to each other's butts.


All times are GMT -5. The time now is 05:59 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.