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-   -   Thynoma and MG (https://www.neurotalk.org/new-member-introductions/131811-thynoma-mg.html)

lolligrump 09-03-2010 07:03 PM

Thynoma and MG
 
HI Everyone! So happy to have found this site. I'm 55 and I was told of my MG after experiencing a drooping eyelid and double vision over summer vacation. An MRI was done along with blood work, that confirmed my condition. I refuse to call it a disease! All of this since July of this year. I have a growth on my thymus gland and am having surgery to remove it on the 16th of September. I had hoped to find someone who could do the removal without the complete opening of the chest cavity, but just couldn't find anyone who does that in the Raleigh/Durham area or in NC. That was pretty depressing, but I have been told that the procedure is really done this way to make sure that all of the gland is removed. Understand that the healing will take 4 to 6 weeks. I'm so blessed to have a job where I can afford to take that much time off work. My heart goes out to everyone with this ailment. Any stories about surgery and this condition that I should know about or that would be helpful? Thanks and I look forward to reading about everyone's wonderful success stories as we travel down the road on this unexpected medical journey.:winky:

Lady 09-04-2010 12:29 AM

Hi and Welcome lolligrump,

Have you tried http://neurotalk.psychcentral.com/forum77.html
this MG forum?

I wish you lots of good luck with your up coming surgery. I hope it helps you and you heal quickly.

I am glad you found us. There are so many helpful people on the NT forum. I am sure someone will be able to help answer some of your questions about MG and Thynoma surgery.
Nice to meet you.:)

Darlene 09-04-2010 12:57 AM

Great to have you here!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number of fellow members here will assist as possible given you some forums to get you started. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:

lolligrump 09-04-2010 11:56 AM

I have looked at the MG forum and it was very interesting. Will keep checking back - Thanks for the kind greeting. Have a wonderful holiday weekend and be safe out there!

(Broken Wings) 09-05-2010 07:00 AM

Welcome to our community here of caring and undertstanding people.

We do support each other. We learn from each other.

Do look around at all the forums. There's so much here to read.

If you need to know how to get around, just ask.


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