Sometimes I feel almost normal
 

I was wondering if any one else goes thru this, I have full body & most of the time my symptoms keep me in bed. My rsd jumps to another location all the time. But sometimes I can go from a week or two feeling great with no swelling sweats or much pain.I wake up like that.and then it comes back like a ton of bricks for two months or so,but it moves all over my body,stomach , teeth skin sweats seizure ingrown nails rash vertigo ,severe swelling exc.. Do any of you have the same type of symptoms.hope all of you are doing well,I feel for everyone of you :) if anyone ever wants to keep in touch my email is cmmngsdan@aol

I have not had that. Although since my last lsb in December and the mild winter I have been doing much better. My pain is mainly in the other foot now. Esp. in the morning.

That is wonderful to hear Dan. I sometimes feel almost normal...at least mentally. The more function I have gotten back the better this has gotten. The pain never leaves me though and I always have to go through all my exercises and treatments to just be able to function. But when I leave the house and go out or do house work or whatever I feel so much MORE normal than I did when I was trapped in the house for so long not able to stand or walk at all...not able to drive or hardly get off the couch, etc. I feel much better now that I can do a lot more things (even if there's still a lot pain) and I can wear more normal clothes and shoes, etc. It's such a mental boost for me to have a greater sense of normalcy back in my life now. But like alt...RSD has never really taken a break for me for any period of time at all. But sometimes I do get breaks where the swelling is not as bad or some of the other (non pain) symptoms are less. Those are really good days.

Hi 89danboy, I too have full body RSD, and your description is me in a nutshell. My good days usually only last a few days tho. I have had a couple of aprox. two week in length reprieves. I feel like I have died and gone to heaven when i do. Most of the time I am in bed because of the pain & swelling. Just recently my Dr. ordered, and I have gotten custom circaid justafit compression braces (not the prettiest things) for my leg swelling and do self-manual lymphatic massages (you can find technique demos on YouTube) several times daily that have really helped with the severe swelling in my legs & arms. Over a 2 month period I have lost 6 inches in calves, 4 inches in ankles, the compression braces keep it from re-swelling. Some trouble getting used to because of sensitivity but so worth it. Also, just recently tried DMSO gel 99.9 Purity 70% Strength rubbed onto legs, lower back, wrists, elbows, and have been amazed at how much it helps with the pain (doesn't take it all away but brings it to what I call a manageable level that allow my meds to work for me). Tried pool therapy, but had bad experience when getting out of pool & got chilled, flared me up bad, so a little reluctant to do that again. Felt great while in the pool but not worth what I went thru when I got out. Anyway enough rambling, hope you find some relief that works for you, seems so different for all of us.

Oregon ducks rule!
 

Hi thacker, I know you can relate to me having full body,I am waiting to have my kettiamine injects again . That really helped me.I did a 10 day outpatient of kett injts and lost 23 pounds during the 10 days.it was all the inflammation in my face & body.and it really helps., only thing is insurance doesn't pay.I start getting my dissability ss this week .they won't take that insurance either.but my workers comp will pay it after we settle.hope all is well in Oregon .I'm a big football fan . Go ducks :)

1]Hi 89danboy, I too have full body RSD, and your description is me in a nutshell. My good days usually only last a few days tho. I have had a couple of aprox. two week in length reprieves. I feel like I have died and gone to heaven when i do. Most of the time I am in bed because of the pain & swelling. Just recently my Dr. ordered, and I have gotten custom circaid justafit compression braces (not the prettiest things) for my leg swelling and do self-manual lymphatic massages (you can find technique demos on YouTube) several times daily that have really helped with the severe swelling in my legs & arms. Over a 2 month period I have lost 6 inches in calves, 4 inches in ankles, the compression braces keep it from re-swelling. Some trouble getting used to because of sensitivity but so worth it. Also, just recently tried DMSO gel 99.9 Purity 70% Strength rubbed onto legs, lower back, wrists, elbows, and have been amazed at how much it helps with the pain (doesn't take it all away but brings it to what I call a manageable level that allow my meds to work for me). Tried pool therapy, but had bad experience when getting out of pool & got chilled, flared me up bad, so a little reluctant to do that again. Felt great while in the pool but not worth what I went thru when I got out. Anyway enough rambling, hope you find some relief that works for you, seems so different for all of us.[/QUOTE]