NeuroTalk Support Groups - "Aware in Care" kits from National Parkinson's Fnd in Minnesota

To reduce drug errors, Parkinson's patients are educating hospitals
By Christopher Snowbeck
csnowbeck@pioneerpress.com
Posted: 11/23/2012 12:01:00 AM CST

... Hy Carpenter, who has Parkinson's disease, wound up in the emergency room this year after getting the wrong type of medication following knee surgery.

Hy Carpenter must take his medication for Parkinson's disease six times a day in three-hour intervals.

If he's late in taking a dose -- even by a few minutes -- the 73-year-old St. Paul man can experience "freezing," as his legs slow to the point where he can't keep walking.

Avoiding such problems can be especially difficult for Parkinson's patients during a stay at a hospital or nursing home, where they can encounter yet another medication risk.

Earlier this year, Carpenter wound up in an emergency room with hallucinations and schizophrenic attacks after he received the wrong type of drug during a short stay at a local convalescent home following knee surgery. His family isn't sure how it happened, but experts say physicians who lack expertise in treating patients with Parkinson's can unwittingly prescribe drugs that should be avoided.

As doctors, hospitals and patient groups keep looking for ways to combat medication errors and adverse drug events, the National Parkinson's Foundation is arming patients like Carpenter with a kit called "Aware in Care" that's designed to help prevent problems. More than 1,000 kits have been distributed in Minnesota thus far, and experts say they can be key to keeping patients safe during hospitalization.

...The kits are
important, Tuite said, because their goal is to "improve the quality of health care, which is as important as coming up with cures."...

... a small study published earlier this year found that Parkinson's patients experienced medication problems in 44 of 55 hospitalizations studied.

Researchers from the University of Calgary found that hospitals failed to seamlessly continue the usual administration of Parkinson's medications. Plus, many patients received medications that could make their condition worse...

"With Parkinson's disease, you have to have your medications on time," said Julie Steen, executive director of the National Parkinson's Foundation of Minnesota. "When you're in the hospital, 'on time' can mean getting a drug within the hour. But with Parkinson's medications, 'on time' means within a few minutes."

The Aware in Care kit is a pouch full of information that's provided to patients at no charge. It includes a prescription pad with reminders about everything from the need for timely drug administration to the specific names of medications that should be avoided; patients or their loved ones can tear off a sheet and hand it to a caregiver.

The kit also includes a medication list on which patients are told to provide information about their drugs and share it with hospital workers. There's also a medical alert card, a Parkinson's ID bracelet and a thank-you card that patients can leave behind for caregivers.

Carpenter received his Aware in Care kit earlier this year from a Parkinson's disease support group at Bethesda Hospital in St. Paul. It helped Carpenter and his wife, Nan, talk with doctors and nurses about how to make sure he received timely doses of his medication while undergoing his knee surgery this summer.

Carpenter usually swallows one of his key Parkinson's medications. But with planning, he was able to receive a dissolvable form of the medication immediately following surgery, when he wouldn't have been able to swallow a pill...

Nan Carpenter said she further realized the need for the kit during her husband's subsequent recovery at a convalescent home. Nan Carpenter did not want to name the facility, but she said she was dismayed when her husband received a drug that doesn't safely mix with his Parkinson's medication and wound up at the ER...

"You have to be an advocate," Nan Carpenter said. "You have to stand up and make a little noise. But it has to be done with respect. ... The kit helps because when you're in a hospital, you're in a foreign place."

http://www.twincities.com/bestlocalb...ting-hospitals

(hopefully, these kits are available in other states, thou I do not know if they are. Madelyn)