HI, hoping to find some support
 

Hi,
I have been looking for a venue besides yahoo groups for some support with dealing with this horrid disease. I have RSD in both my legs, early signs in left shoulderblade, severe migraines which last brain scan has shown some changes asummed due to them, as well as for the last 2 years seizures of what they call unknown origin.
The RSD originally started in my left foot after tripping over a tent stake while doing a rennisance faire in 99. Got worse from there and spread. You name the med I have likely either taken it or am. really tired of the constant fog due to all the medications. Did have a spinal stimmulator, however the 3rd revision, I ended up with a staph infection so that came out. since then its pretty much been down hill. Plus the health stuff has all but destroyed my marriage.
I also suffer from migraines and have since I was 16 but over the past few years they have gotten worse as well as add seizures to the list.

Hoping to be there for others with these horrid things and by being there for them, hope that will find are there for me as well. Have been looking for a group or to start one down here in east county san diego, so we have a place and people whom understand what it is like.

Blessed Be
Deb

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Merry meet and welcome to NT ... there are lots of friendly and supportive people here ...
http://neurotalk.psychcentral.com/forum11.html this will go to the Epilepsy and Seizure Disorders forum
http://neurotalk.psychcentral.com/forum32.html this will go to headache forum
i wish i could help more with directions of where to try to find answers ... i hope this helps though ,,, and again ... welcome

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Hi Deb...welcome to NeuroTalk!

Here's the link to the RSD forum in case you haven't found it already. Please feel free to have a look around and join in wherever you're comfortable. There's lots of very caring and supportive people here on this site. We're happy you joined!!

http://neurotalk.psychcentral.com/forum21.html

Hello and welcome to Neuro Talk, following those links and posting questions is a great way to start here, take your time explore and ask away. you will find many helpful and kind people here, again welcome to NT

Hello Deb and welcome to NeuroTalk. Please take a look around and make yourself at home. Glad you found us..

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Hi Deb and Welcome to NeuroTalk. This is a great community with a lot of great people, support and lots of information.:)

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Hello and Welcome to Neurotalk - you will meet many great and supportive people here who I am sure will be more than happy to help you in anyway they can.

I'm sorry to learn that you have RSD also :hug:. I have RSD in my left leg and right arm, I got it when I was 12 years old, I am now 13. If I can help you, please just let me know. I know how scary it can be dealing with such a terrifying condition.

Sending you many pain free :hug: and look forward to seeing you around the forum soon!!

Alison