NeuroTalk Support Groups - want ur personal opinions on benzo use for epilepsy

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want ur personal opinions on benzo use for epilepsy

Hi every one, i'm very interested in finding out ur personal opinions on the best meds you
ve tried for patial seizure, or complex partial seizure, i have tried benzo's before in my life, for diferent resons, and had nothing but trouble on them, mood swings ext. I havent seen my neuro yet and this will happen in early july. i most definatley dont want to go in BLIND tried on a whole bunch of meds like a guinny pig. i know benzo's dont suit me and need to hear, anyone who's willing to give their personal opinion on what meds had the worst side effect ect. i've lost faith in the medical industry due to years of no diagnosis and i would prefer to hear your side of things so i can be informed before being medicated.
thankyou so much. jen

I have:
Intractable Complex Partial Epilepsy with loss of
consciousness

I currently take:
Zonegran 500 mg daily & Klonopin 1.5 mg daily
along with Folate (Vitamin B-9) 2 mg daily

Klonopin (Brand) Clonazepam (Generic) is a Benzodiazepine
aka Benzo or Benzos. It has no effect on me at all and is
well tolerated with me.

Benzodiazepines Family has a very large Tree:
This website below will give you more information than I can
provide you - keep in mind, the list of drugs provided there is
only a small list:

http://en.wikipedia.org/wiki/Benzodiazepines

It is interesting reading.

Many Doctors revert to Benzos when their patients are
unable to tolerate Barbiturates; such as Phenobarbital,
which is hardly used anymore. Benzos are MILDER than
Barbiturates.

Hope this info helps.

:hug:

JEN:

I just noticed you're from Australia ....

There are other Medications available in Aussie Land, as
I have Aussie friends who have Epilepsy and they're on
other AED's (Anti-Epileptic Drugs).

Here's your Epilepsy Action Australia where you
can get a better Neurologist if you feel that your
current one isn't doing a good job.

http://www.epilepsy.org.au/

Since my doctor change my medicine I have decreased the number of spells I have greatly.

Currently I am on Keppra and lamitical, which he is easing me of Keppra. When I have a spell they are quiet short and I am back with what was doing, before I usually had to lay down for an hour and sleep.

Darlene:hug:

Thanks Sharon and Darlene, i will look at the Aussie site Sharron,
I know i'm prob asking way too many questions , but i've so far had the best info and help regarding my health issue's.
by chatting to people that have BEEN there, it appears to me if we dont learn as much as possible on our own, we can realy be messed around by the Medical proffession, do you know when i called the Neuro to make an apiontment to see her and tell her whats been going on , the reseptionist at the desk was very rude and insited i have an eeg , before the neuro would even see me. so she booked the eeg in and acted like i didnt know what i was talking about. so today i rang them back and asked her if they had booked me in for photo sensitve test or sleep deprived test and she said NO! and i said , well thats when i get my symptoms, and she say's OOOOOOOOOOOOOw i best go talk to the neuro fist, do you know what?
if i hadnt been firm i'd have gone in there PIAD for an eeg that may have shown nothing, i'm so over stupid money grabbing people that dont listen to the person who knows whats going on with themselves. it would have ended up as yet another dead end for me. i could just screem!! why do we as patients have to know all about what's wrong with us before they listen, almost 13 years have past with no help from anyone, finaly got a doc who listend and is helping me, arrrrrrrrrrrrrrrrrrrrrr. spit winge vent
thanks again.