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-   -   Exhausted.....just exhausted! (https://www.neurotalk.org/myasthenia-gravis/101408-exhausted-exhausted.html)

erinhermes 08-26-2009 04:11 PM

Exhausted.....just exhausted!
 
Hello all! Sorry I haven't been on much but I have been so flippin tired! I have been sleeping 14-16 hours daily and wake up tired, plus my arms and legs have been really weak.:(

I spoke to Dr. I today and we have IV IG set up for next week, as I am planning on heading to upstate NY on the 9th to see my precious niece! YAY!:D

I am soooo ready for my IV IG! It makes me feel so great! :D

I start Monday of next week and plan on coming home every night - especially since I'm going to be away from Mike and Devon the following week, but think I really need this right now!

For those of you who do pray, please do so! I really need to feel better in order to see Lilli....

Love,
Erin:hug:








billie 08-26-2009 04:26 PM

What is it
 
Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie

erinhermes 08-26-2009 04:52 PM

HI Billie!
 
Hi Billie! How are you today? I have Myasthenia Gravis - a disease that causes terrible fatigue.:(

IV IG is a drug that is given to maintain my immune system - in my case help suppress it - via IV as my veins are SHOT due to all the meds I take.

If you are interested, my entire story regarding MG is @ www.mgsouthtexas.org - it is long, but explains everything in detail!:D

THank you for the prayers! They mean so much to me!

Bg hugs!
Erin:D










Quote:

Originally Posted by billie (Post 559276)
Erin, your symptoms sound like mine from this post. I am fairly new and have not corresponded with you previously. Since I can't see your post at this time, I can't remember exactly what you called it, but what IS an IV IG? What is the nature of your treated condition? I really appreciate the information. I would have sent this by PM, but my connector is malfunctioning. Thank You. And I AM praying for you! billie


dog lover 08-26-2009 06:13 PM

exhausted.....just exhausted!
 
Erin,
I am so sorry to hear you are feeling so bad. I'm glad you're going in next week for your treatment so you can enjoy your trip to see your neice. I do believe in the power of prayer and will definitely be praying for you.
Kendra:hug:

JCPA 08-26-2009 06:22 PM

Sorry you are having a down time Erin. I will remember you in prayer.

Shari_W 08-26-2009 07:08 PM

I will keep you in my prayers Erin. I hope the IVIG gives you that extra boost that you need so you can enjoy your niece.

TxSimon 08-26-2009 09:19 PM

Erin,
As always, you have got my prayers, my friend! Take care and keep in touch.
Huge Hugs to You,
Simon

nemsmom 08-26-2009 10:44 PM

oh sweety
 
I'm so sorry you're felling weak and exhausted. I will say a prayer for you and I hope you feel better soon.

Enjoy your Lillie! That is if I don't talk to you before then.

Have a good night.

Kristie

Nicknerd 08-26-2009 10:59 PM

Hey Erin
 
I hope that the IViG gives you the strength that you so need at this time, and I hope that your trip to see your niece goes awesome! Good luck with everything and I WILL pray for you!

Btw, I clicked on the link that put up for Billie....Your story is so moving, Erin! I mean I knew pieces of it from your posts here on the site, but had never actually read it in chronological order...What were those spots that they had discovered on your lungs?

Nicky

AnnieB3 08-26-2009 11:35 PM

Erin, I hope you will feel 100% better after IVIG and will have a fun and safe trip.

Annie


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