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-   -   Cipro, flagyl and PN (https://www.neurotalk.org/peripheral-neuropathy/235455-cipro-flagyl-pn.html)

grandma123 05-02-2016 11:31 AM

Cipro, flagyl and PN
 
Two years ago I had a flare up of diverticulitis and was given cipro and flagyl. I don't recall any major problems other than some diarrhea. I just had another flare up and was given the same meds and had a terrible time with them and quit after 2.5 days. I had uncontrollable diarrhea, and was so sick to my stomach but when the tingling in my hands started on day 3 I quit taking these awful meds.

As part of my normal routine I take the most absorbable form of magnesium and florastor. I doubled the florastor while on and after the antibiotics.

I stopped taking any NSAIDS

Will this tingling stop now that I am off the meds. I only took 5 cipro.

Should I be taking anything to help improve the symptoms? Thanks.

caroline2 05-03-2016 11:51 AM

Personally I've never taken Cipro or any abx in that class but have heard from enough who have encountered longterm damage from this type abx and others in the fluoroquinolone class. Fluoride is one of the ingredients in this drug, and I'm a huge anti fluoride advocate.

http://www.webmd.com/brain/news/2013...nolone-warning

If I were ever in a position and told to take this drug, I don't know what I'd do, ask for another type and be in so much fear.

Hope you can feel better.

grandma123 05-03-2016 03:52 PM

Quote:

Originally Posted by caroline2 (Post 1210127)
Personally I've never taken Cipro or any abx in that class but have heard from enough who have encountered longterm damage from this type abx and others in the fluoroquinolone class. Fluoride is one of the ingredients in this drug, and I'm a huge anti fluoride advocate.

http://www.webmd.com/brain/news/2013...nolone-warning

If I were ever in a position and told to take this drug, I don't know what I'd do, ask for another type and be in so much fear.

Hope you can feel better.

Thanks for your feedback. I was hoping to hear if this PN is temporary or permanent. I guess there is no way to predict. I stopped both meds on day 3 - they were prescribed for 10 days.

Protector 05-12-2016 05:55 PM

It's about time
 
Article in today's Wall Street Journal:

The FDA is calling for an updated boxed warning for a class of antibiotics that includes Bayer AG’s Cipro, as well as Johnson & Johnson’s Levaquin and their generic versions.
By THOMAS M. BURTON
Updated May 12, 2016 5:41 p.m. ET

WASHINGTON—The Food and Drug Administration said Thursday it will require heightened warnings about serious and sometimes disabling side effects from the commonly used class of antibiotics called fluoroquinolones.

That class of medications is mostly sold now as generic drugs. But well-known brand names include Bayer AG’s Cipro, generically called ciprofloxacin; and Johnson & Johnson’s Levaquin, or levofloxacin. The class of antibiotics has been marketed for about three decades.

** Copyright ©2016 Dow Jones & Company, Inc. All Rights Reserved**

mrsD 05-13-2016 09:30 AM

Yes, seems it took decades for the FDA to respond to the side effects of fluoroquinolones!

In the early days, of their release to the public, a science writer wrote a book about theirs risks and his tireless work to get a hearing from the FDA... all for nothing then. His wife developed a form of epilepsy from Floxin, from one day use! At that time, also, Oprah had a show on drug side effects and reactions which mentioned this drug also, which caused problems for one of her producers.

http://www.amazon.com/Bitter-Pills-I.../dp/055337852X

I bought this book when it came out, in Hardcover in the '90's.
I find it very sobering to see how many years had to pass before our FDA took these side effects seriously finally. :rolleyes:

caroline2 05-13-2016 12:43 PM

What I feel about the FDA etc would not be allowed to be printed here.

So I'll say from my long life on this earth, I haven't met a drug that does not leave us with a side effect, maybe desiccated thyroid but can't say that with total sureness.

Ragtop262 05-16-2016 05:39 PM

Quote:

Originally Posted by caroline2 (Post 1211156)
What I feel about the FDA etc would not be allowed to be printed here.

So I'll say from my long life on this earth, I haven't met a drug that does not leave us with a side effect, maybe desiccated thyroid but can't say that with total sureness.

Yes, that is very true. As an acupuncturist/herbalist that I used to go to always said "every medicine is also a poison - so you must use them with utmost caution".

ElaineD 05-20-2016 10:32 AM

I was on a fluoroquinolone (Macrobid) for over a year. At one point, for three months. This predated or was coincident with my development of profound PN.

Stopping the fluoroquinolone did not improve my neuropathy, I'm sorry to say.

Hugs, ElaineD

mrsD 05-20-2016 10:51 AM

Quote:

Originally Posted by ElaineD (Post 1211829)
I was on a fluoroquinolone (Macrobid) for over a year. At one point, for three months. This predated or was coincident with my development of profound PN.

Stopping the fluoroquinolone did not improve my neuropathy, I'm sorry to say.

Hugs, ElaineD

Macrobid (nitrofurantoin) is not a fluoroquinolone:

Nitrofurantoin - Wikipedia, the free encyclopedia

Fluoroquinolones have a fluoride in them.
This is a listing of them:
Category:Fluoroquinolone antibiotics - Wikipedia, the free encyclopedia

Only a few are available in the US.
The chemical structure of fluoroquinolones is much different from nitrofurantoin (Macrobid)

However statins are far more destructive.
How Statin Drugs REALLY Lower Cholesterol (And Kill You One Cell at a Time) - YouTube

There are more videos on YouTube yearly about statins, as the patents expire on them.

Vowel Lady 05-31-2016 04:26 PM

I was going to say the same. Macrobid, is often used to prevent or fight bladder infections and is not the same thing.
It sounds similar.
I was on Macrobid for several years.
I use a natural product now.

Like I think Elaine and Caroline have mentioned here,
I too have had good luck using natural products for a variety of things.

I saw (heard) on The Truth About Cancer series on TV, a doctor, who did not want to show his face, say (I'm paraphrasing) that meds with questionable studies are sometimes pushed through the FDA in very inappropriate ways and one way the FDA might be working its away around this is to use the black box warning.

My thought was...stay far away from a med with a black box warning.


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