Desperate plea for some help!
 

Hello all, Im new here and my name is Angie. My other half was diagnosed with Neurosarcoidosis last year although the diagnosis was pretty difficult as he didnt have all of the classic symptoms and they came to that as the nearest diagnosis via an ankle nerve biopsy. He has vasculitis and severe peripheral neuropathy with no feeling at all all down his right side. He has recently finished a course of intravenous chemotherapy (cyclophosphamide) which doesnt seem to have helped and we are desperate to find something that will help him and speak to anyone else in the same position. He is currently on gabapentin and other tablets but he has now got to the point where he feels he is never going to get better. Please can anybody help in any way?

Hi Angie,
Welcome to the NeuroTalk Support Groups.

I can't really help you except to tell you that if you type Neurosarcoidosis into the full forum search feature

http://neurotalk.psychcentral.com/search.php

you'll find some older posts.

http://neurotalk.psychcentral.com/se...urosarcoidosis

Whether they have the information in them that you're looking for I don't know. It's worth a try though.

:Wave-Hello: Welcome Angiep.