What do you guys think I should do?
 

This has been one hell of a week... First off, about a month ago my insurance/pharmacy got mixed up and i was off of my rebif for about 3 weeks. Started right back on my 44mcg dose which kinda kicked me in the butt after being off of it for that long. Took my shot Monday, Tuesday I woke up hung over feeling so I slept in and went to work late. Later in the day my face felt different and heavy, so I went home and went to the ER where they admitted me.

Tuesday came and went and then Wednesday got here. I was at the hospital receiving IVSM (4 doses) until the neuro finally got there (not my neuro btw) looked at me and said ok you can go home. (i was begging him to let me) The admitting doc said no. I left AMA. Got home wed. night late, stayed home on Thursday, went to Walmart to fill prescription and had to ask the fiance if I put my contacts in. I had...

Everything was very blurry like I didn't have my contacts in at all. Then I started getting sharp stabbing pains in my eyes along with a horrible pressure. Went to work on Friday, stayed for 2 hours before freaking out that I couldn't see and said i was going to ER. Ended up fighting with fiance the whole way home. He said I didn't need to go because there was nothing they could do for me.

Now here I am today still unable to see clearly, still having the pressure in my eyes and occasional stabbing pain. I was sent home with prednisone 20 mg..

I kinda think I need to get checked out... what are you all's opinions? I dont want to go blind... or lose my job for that matter

I stand by my opinion that anyone who is considering whether or not to seek emergency care probably should. Better safe than sorry.

Oh sweetie! first :hug: hugs for you. its been a big week for you.

my opinion is that you should call YOUR neuro, and ask for him to call you at home. Since you just left the hospital and the treatment for this is IVSM and that is what you received, then you need advice. I dont blame you for being a bit in a panic. I panic when my eyes go wonky as well. Sometimes just resting will help, and taking out the contacts, to give your eyes a break.

That being said. Just because you have MS doesnt mean this is an MS thang. If you are hearing that little voice inside your head scream GET HELP! then...I would listen. Make sure you call your neuro and let the answering service know which ER you will be going to, and DEMAND that he call them, and co ordinate your care. Make sure you express to them how freaked out you are, and the severity of your visual issues.

No one likes the hospital, but sometimes we all need to land there in order to receive more intensive treatments. Weekends are no fun cause the folks we trust and lean on are normally off doing their own family things. We get stuck with strangers who dont know us, and dont understand.

If you think you should go...then GO! Later on have a chat with the fiance' about just how scary it is to lose your vision, and be out of control with your body not doing what a body is supposed to do. Tell him he can be as upset as he wants to be, but NO discussion till you are past the crisis, and can discuss it calmly in a time that isnt full of stress and urgent needs. NOW ISNT THE TIME to argue about such things.

more hugs. :hug:

I'm sorry to hear you've had a rough time .... but there really isn't anything that I know of that they can do for you. You have had 4 doses of steroids (1000 mg?), and that is what they use to treat ON.

I ride out all my attacks without steroids, and although it (perhaps) takes longer to recover, most times I recover with very little damage:

"Conclusion: Our observations suggest that OPT following treatment with IVMP for an MS relapse does not lead to improved neurologic outcome after 12 months compared with treatment with IVMP only. Moreover, our findings raise concerns regarding the common practice of using OPT following IVMP. Further studies are indicated to validate our findings and minimize exposure to systemic corticosteroids, well known for systemic toxicity..."

http://www.wellsphere.com/multiple-s...lerosis/562959

http://www.mult-sclerosis.org/steroidtreatments.html

In fact, MOST attacks don't result in permanent damage:

http://www.docguide.com/news/content...2574CE006FA213

Hope that eases your mind a little .... TIME and patience!

Cherie