New member
 

Hello, I am a new member. Sudden onset of dbl. vision, lasting 6 wks. Recently diagnosed with Generalized MG. I am an RN so I was very persistant in getting a quick diagnosis. On treatment now, back to normal routine, work. Heat seems to be an issue, limits my time in the garden. Will be on here occassionally.

Welcome! :hug: Since you are in the medical profession, you may have an advantage than most of us had, but you will still learn much from the wonderful folks on this site.

I too started with the sudden onset of double vision and also ptosis. It's now been a year since diagnosis -- crisis in November, thymectomy in December, radiation treatment January-March. It's been a wild ride, but I'm doing OK now. Still taking Mestinon. Handling the heat better this summer than last.

Welcome ORRN!!

What a fastinating job you must have!

Yes, heat is the worst. I too like to spend lots of time outdoors. One thing I have found has really helped me while gardening --- a plastic bag filled with ice and wrapped in a light weight towel tied around my neck!!

Looks stupid - - feels great! And I don't get exhausted.
Sue

I am a medical assistant and absolutley love my job, so i can totally relate to you!!! i want answer and treatment plans so that i can go on with my life...well for me ive hit a wall...ive met with the drs i work for and we have come to the conclunsion that at this point my job is too much for me right now.....hard pill to swollow let me tell you. i meet with my neurologist on weds to see when my next ivig treatment will be, and i talked the drs that i work for into letting me do light work until then and once i start that treatment i will take time off to let it actually work with my body. I had my first ivig treatment done in the hopsital 3 weeks ago when i was on the verge of going into a crisis and it was amazing...but i went back to work and within days i was totally worst then even before, so i am very careful at what i do to not push myself but am having a huge problem accepting the fact that i will have to step back and let my body fully except the treatment, rest and then slowly reorganize my life back to were i am not on the verge of a crisis everytime i try and do a "normal day" good luck to you. ive learned you must speak up for yourself and make sure you do whats best for you!! no one will take care of you but you so when you feel run down and tired make sure you take a step back...or you will do what i did and just make yourself worst. This disease has already taking the person i use to be away and i have accepted that....that i am not longer the cheer coach, peppy, can do anything and be there for everyone person....but i will not let it take away my job, so if that means that i need to not work for a few months to regroup then i guess thats what has to happen.