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-   -   RSD GOING TO mayo (https://www.neurotalk.org/new-member-introductions/16460-rsd-mayo.html)

susanbeshore 03-28-2007 08:08 AM

RSD GOING TO mayo
 
Hello,
I was recently diagnosed with RSD via bone scan. I am planning on going to Mayo for more treatment options. From reading this site I am not hearing anything good,can someone have some support re is Mayo the best place to go?:)

tmrsfitz1967 03-29-2007 12:55 PM

I was just recently diagnosed from a bone scan also...let me know what ya do because me I dont know I broke my ankle still have movement and am on meds but they want to do some injections ??? Dont know what to do..Take care Tammy

michael178 03-29-2007 03:30 PM

Newsweek just ran an analysis of all the medical centers in the US and Mayos in Rochester, MN ranked 1st I think in Neurology. My father was a resident neurologist at the Mayo Clinic years ago, and I can tell you that it can sometimes depend on who you draw as your doctor, but Mayos does extensive consultations on problematic cases, meaning that a team of doctors confer on those cases and then you get the advantage of input from the best Mayos have.
Bring a book with you, you spend a lot of time waiting to getting for tested, but I just heard from someone who came back from there and she was delighted with their speed and efficiency. She has Cadasil disease which is a complicated and rare neurological disorder, and Mayos handled her just fine. There are plenty of motels and hotels so that is no problem. The Kahler Hotel is across the street and has a heated tunnel into the main clinic building, but it is at the high end of the housing market. It won't be 20 below when you are there, so you will not need the tunnel, or subway as they call it. The Radison Hotel is another good place, but it is near the high end too and further away. If you look at a map of Rochester, the main clinic building is in the center of the city, so you can plan from there. There are a lot of mom and pop motels that are clean and neat. And there are plenty of restaurants. Michaels used to be one of the best restaurants. But I have not been back there for some time and do not know anymore if it still is.
Have fun, and good luck.

Chemar 03-29-2007 03:59 PM

hi and welcome to you both :)

I would suggest asking on the RSD Forum as the members there are sure to have lots of info for you

here is the link to our RSD Forum
http://neurotalk.psychcentral.com/forumdisplay.php?f=21


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