RSD'ers... anyone try...morphine??
 

As many of you know..ouch..my system is very ultra snesitive and I can't not try meds as my Dr. recommends..so he has recommended morphine now.. Anyone one taken that with success of lower or managing their pain?? Any advice about what to expect?? My RSD is noted as a very aggressive form..and my system can not withstand pain meds. but I need to keep looking for help...

Hugz,,Kathy:grouphug:

Hi Kathy,
 

I tried Moraphine years ago and it just made me sick. Same with the patches you can wear for days, after 6 hours I would be vomiting. I believe they were moraphine patches. Others could tell you more about it.

I like the Methadone. Don't know if you have tried it but it seems to have the least side effects.

I believe with any med sometimes the Drs. start patients out on too high of a dosage and their body can't get use to it.

Ada

Dear Kathy,

I would also suggest Methadone...I was taking 5 mg 3 times a day for many months. It works REALLY well for nerve pain. Many people on this board take it with little or no side effects other than constipation.

Morphine is another med I use. I learned that opiates (morphine is in that family) AND methadone DON'T go together, they cancel each other out. I had been prescribed both by a RI doc, and no one set me straight until I saw Dr. Getson in NJ. (I'm still bummed that my beloved Boston doc missed that one!). I wear a 75 mcg Fentanyl morphine patch that I change every 48 -72 hours. I would like to taper down to a lower dose soon because of the constant "brain fog" and depression. The Fentanyl patch has been invaluable to me since last summer when I became so sick with head pain. For a while I even went up to 100 mcg and had Perc for break through. (One of the reasons I likely needed such high doses is because I was also taking the Methadone with it - and they weren't working well together!) You can only be prescribed Fentanyl if you have been taking opiates on a regular basis for a several months and are deemed to be "opiod tolerant."

I sincerely hope that you find something to help you...have you tried any of the Mindfulness Training that is available on the UMass website? FMichael has written extensively about it in the past, and I can provide a few links if you would like.

Good luck, XOXOX Sandy

thank you....
 

Ada and Sandy.. you are fantastic!!!! Thank you very much on your feed back..you know my story..I did fill the script but waiting for the right time to start it..that tells you a bunch also... Methadone was considered by my Dr. that day but see I do have some cardiac problems..not related to my RSD.., I think.. anyway due to my heart trouble my dr. immediately erased the thought of the Methadone and advised his Asst. to start me on a low dose of morphine..well try it anyway..As far as the patches..tryed them also..even nausea there as well can't get them off without shear pain... I have not tryed the mindfulness website..If you promise it won't make me hurl..then why not?! tee-hee... Look at me chicken to start the med..just don't like being sick...again..

I so enjoy each of my friends here..I'd be lost without you...

Luv.. Kathy:hug:

Hi Kathy,
although I've been taking Methadone for about 20 years, due to a head trauma, I get nauseated.
My Doc gave me
"Promethazine"
(I guess that's the generic name) 25 mg tablets.
One takes it right away.
Good luck to you!

pete

I was put on a PCA (Patient Controlled Analgesia) with Morphine in it when I had an ingrown toenail removed a few years ago when my RSD first started and I was just diagnosed. It's a pump that allows you to have Morphine given every few minutes to try and control the pain. All you have to do is press a little button and it is put into the bloodstream automatically and then the Doctors can control how often you have been using it. It helped me a little bit so my Doctor decided to put me on oral Morphine but unfortunately, that didn't work as well and made me feel really sick (most people recommend taking something with it to stop nausea).

I hope it works should you wish to try it. As you know, everyone is different and no two people react the same.

Best wishes,
Alison

Hi KS.

I, like you are very sensitive to meds. Most opiods make me terribly sick. Tried Vicodin, Percocet, etc. I have been taking a synthetic morphine for the past few months called "Nucynta" 50 mg three times a day. Usually I am not sick, but when I'm in a flare my stomach is even more queasy. My Primary doc gave me promethazine for nausea and my Neuro flipped out and demanded I stop taking it immediately due to permanent muscle twiches and tics. So, my primary put me on "Ondasetron" 8mg twice a day. Generic. I'm sure my Neuro will freak again, but I would rather twitch than be soooo sick. The Ondasetron is given to pregnant women and cancer patients going through chemo. It got so bad with the nausea that I avoided going out in public. I just never knew when or where I would be when it hit me. Embarrasing!

I wish you luck. It's a horrible way to feel!

Check out :

http://www.umassmed.edu/Content.aspx...d&itemid=41254

http://health.ucsd.edu/specialties/p...mbsr/audio.htm

From the UMass site you can follow the links to a variety of places - I found where there was even a list of courses offered in my area. FMichael writes much more prolifically on the subject - find one of his posts and click on his name and then you can find his older posts. He provides the name of the founder of the Mindfulness movement Jon Zabat-Kin (or something similar), and his best books on the subject. My therapist recommended another book on the subject which I ordered from Amazon - "The Mindfulness Solution to Pain," by Jackie Gardner-Nix. Basically, mindfulness helps you relax and pay more attention to how you respond to the pain in your body. Instead of tensing up and fighting it, it encourages you to feel it, explore it, and accept it. The biggest impact for me has been sleep - I am able to relax my body much better than ever before and fall asleep after waking repeatedly throughout the night from pain.

Have a nice evening, XXOXO Sandy

Thank you everyone for the scoop..Sandy, thank you for the websites and getting them up for me..I will for sure check the out.... Funny..yur thought of waking repeatably throughout the night... that is me sista... I hate that but I do fall back to sleep...As far as the morphine..Can I tell yeh..I am ner-val...(nervous)...

hugz all..... k

Hi Kathy. I also have a sensative stomach and aggressive CRPS. Began with:motrin, naprosyn, darvocet, percocet, vicodin, valium then Kadian(a morphine sulfate) supposedly has a more even release of morphine which means it is less addictive but it really messed with my head and constipation, next was Oxycontin which wasnt as bad on my stomach or head but still foggy. Didnt control my pain or spread. Then put on methadone which found it doesnt bother my stomach like the other 2 and definately better on my thinking. I called it my miracle drug. My one Dr. who was into ketamine disagrees with using opiods but I am continuing on methadone and continuing to research. The problem i have found is we all react differently to different meds. Good luck. momof4