Hashimoto living in pure hell... HELP!!??
 

Hello, I'm new so please bear with me, just kind of wanted to be able to communicate & Converse with others that have this disease... And how it affects your every day life... Is it just me or can anyone out there tell me if they experience what seems to be flareups with this Hashimoto disease? When I first got sick over 12yrs. ago, I new something was definitely wrong and something was going on internally with my body, I would have these little episodes of days of total fatigue, & feelings of flu like symptoms... Back when I was still able to work I had been a certified medication aid, so I was somewhat familiar with lupus symptoms due to working with a few of my little patients that suffered from it, I was a medication aid for 18 yrs. so I've worked around patients with lots of different sorts of health issues therefore knowing a little bit about lupus,I knew that Lupus has what the medical team refers to as flareups, well these so-called flareups were starting to happen to me, I thought tonight self oh my gosh cut I have lupus? After being tested for it on three separate occasions, I was told it was definitely not a lupus, after that, I was very relieved that it wasn't, but I knew my body, and I knew that something just was not right with me, so I set out on a relentless mission to find out just why I keep having all these crazy symptoms. Then the "GOOD DAYS" & the totally "DEBILITATING DAYS" well after yrs. of my own investigational work and seeing Dr. after Dr. to no avail with the diagnosis... I finally have been 100% confirmed with the diagnosis of Hashimoto thyroiditis, so, I'm just wondering does anyone else out there experience flareups with their Hashimoto disorder? Also wondering if it has totally disrupted your every day life, and even on medication for thyroiditis my life is still terribly so disrupted by this disease that I am almost home bound... Does this sound familiar to anyone out there? If so, please help, any comments would be greatly appreciated thank you, respectfully, Lucy

Welcome to NeuroTalk:

I can understand how you feel. I've had a recent diagnosis of lupus myself.

Here is our Autoimmune forum link.
http://neurotalk.psychcentral.com/forum44.html

I think you should search Hashimoto in the search field in the upper right of page 1 there. Most of the posts are in the past, as those people don't stay long here. But there is good information and some insight to be gained by trying the search IMO.

Dear Lucy,

My sister-in-law and her daughter (my niece) have Hashimoto. They do suffer with fatigue to some degree even on medication but neither have ever mentioned to me any type of "flare-ups" with it. Maybe your medication needs to be adjusted. I know my sister-in-law is very compliant with her medication but my niece is not as regimented and has times when she has more effects of her condition because of missing her meds on occasion. They are both periodically checked (blood work) to see if things are going OK.

Both work and never miss a beat. Live full, productive lives. Absolutely no lack of abilities whatsoever. The fatigue issue is very mild,... except with my niece and I think that is because she burns the candle at both ends. Typical for someone in their twenties. I think her fatigue stems from her lifestyle, not her Hashimoto.

Sorry I do not know more about the condition or able to offer any more information. How long ago were you diagnosed and how long since your last blood work?

Maybe some one here will be able to provide you with a better response. Wishing you the best.

mrs D

I am so sorry to learn you have lupus. Is this a recent diagnosis? (Stupid question, your post plainly states recent.) Regardless, I am saddened to learn of this. Sure hope you can manage it without the complications. Wishing you the absolute best possible.

PS I guess I was just shocked by the news. You did not have enough going on without adding lupus to the mix ??? So sorry to hear the news.

Mine is a "drug"induced type. This last reaction was my second (lisinopril).
My first flare was from my pregnancy--- hydralazine. Both my knees swelled up terribly after delivery from that drug.

So mine is at this time not treated. But I seem to have arthritic flares so I may be going to a rheumatologist soon.:rolleyes:

Welcome Lucy Mitchell.:Wave-Hello:

Nice to meet you!!