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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Need help explaining my PCS. (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/187480-help-explaining-pcs.html)

aldora 04-24-2013 07:48 PM

Need help explaining my PCS.
 
I had a discussion with my friend today regarding a concert we are suppose to attend, as we always do every year. I told her a couple times already, well in advance, that I can not go. I explained to her my current relapse which caused me to quit my job.

She seems to believe that I will miraculously be better/cured in 2 months and that I will be able to tolerate loud music, flashy lights and drunk people screaming all around me. Then she compared me to a NHL player and his multiple concussions. Basically, if he can still play, I should be able to attend the concert. I gave her examples of not being able to drive and listen to music at the same time, wearing sunglasses even on cloudy days, how loud music and clanking of weights in a gym was enough to trigger symptoms. What can I say to her that will actually ring a bell for her and she will "get it" and find someone else to go with. I told her I may be better then, however, it does not mean I can be in that type of environment and I have no desire to compromise the recovery process.

Thank you for your responses.

poetrymom 04-24-2013 09:16 PM

Show her some posts here
 
I guess I would invite my friend to see some of the posts here. People are pretty good at describing their problems.

Or how about seeing if she will watch that series, You Look Great, Inside a TBI -- it's on YouTube in about 6 parts. There is a link to it on one of the stickies. It's really good.

So glad you are realizing what you probably can't do -- so you don't relapse. I am going through that too and it's hard for me to admit -- I am not ready to go see a play.

I hope this helps.

Sincerely,

Poetrymom

Mark in Idaho 04-24-2013 09:34 PM

Aldora, check out the Vitamins sticky at the top. At the bottom of the first post are links to the You Tube and other online explanations.

If you need a medical explanation to overwhelm her with, I can get very medical science oriented for you to print out and have her read.


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