8 months with rsd
 

I guess in 8 months time, rsd can really start changing a whole lot. The pain is all the way in my right foot and going up the right ankle, and my other foot started feeling the burning pain also.. It seems like my ankles give out quite frequently and then I also have a burning pain occasionally down my left thigh where I had knee surgery for a broken patella.. I just wonder after they did my 2 knee surgeries (and my knee cap has been numb since then) if that might have started all my nerve problems just wondering??:o

You may have stated this in the past but are you seeing a neuro or have you? It is hard to know sometimes what was the cause. My rsd is in my inner ankle/foot/calf and spread to both and possible eyes. I have had this 2.5 years and finally am making progress but still the pain is high and I am limited. I am sure you stated but are you on meds for the pain and burning? Are you in PT? I know especially in the start my ankle felt like I would give out or was broken but now even through the pain it does seem stronger from doing more on it. Just hard when the pain is so high to keep moving. Sending thoughts

My 2 knee surgeries to same knee caused my CRPS issue;however, my RSD traveled Up my right leg, mirrored to the left knee and then up the left leg, then hips, spine, and off and on, I have issues with my hands.
I am experiencing the cold lower legs,currently.:hug:

Hi SGirl.
It seems likely that your surgery had some effect, doesn't it?
Did you have any injury or rsd before the surgery?
And, was the surgery to both knees?
And, a numb knee certainly seems to indicate some nerve damage.
But, I'm not a doctor, and couldn't even begin to tell you for sure.
I think it's possible though, if there's a certain timeline...

Hope you get some relief!

Pete

Hi Sunshine Girl,

I think I am just a little bit further along than you as far as the "explosion" of symptoms. I started to get really sick just after last summer ended.

Hard to believe that it may still get worse, isn't it? I was looking forward to the warm weather because I thought that I might feel like I did last summer. Little did I know how wrong I was. Bummer.

I'm sorry you are having problems with the strength in your feet. If you can keep trying to move on them, just even a small bit at a time, it will help your strength. I've got RSD in my right leg now, but I can still use it so far. That might be because I have been using so much all along, or maybe it's just not as bad as it's going to get yet.

In any case, I really hope your ankles can hold up for you for the long term. Do you have a good PT? If not, I would recommend that you try to get one. I trust mine to help me with withever problems I have, he knows just about everything (or knows how to find out). I think it's made a huge difference for me.

Take care, Sandy

I agree with what the others have said. It sounds like the surgery could have caused some problems though you would really have to speak to your doctor about it to be sure.

I know for me, all surgery and even minor procedures are out of the questions as they cause more problems for me. I have had both a nerve block and an ingrown toenail removed on my RSD leg and both made me worse (the nerve block put me in a wheelchair for 13 months and the ingrown toenail removal made me develop severe myoclonic spasms). Since both of the procedures caused a worsening of the RSD, my doctor has urged me to stay away from all surgeries unless absolutely neccasary (eg, for life saving treatment).

I'd speak to your dr about your lastest symptoms and see what he/she thinks if you haven't already. It's important you speak to him and let him rule out all other possibilities.

I hope you start feeling better soon. Sorry you are having to deal with all of this also as I know first hand just how hard it is to cope with at times!:hug:

Take care and keep us posted.

Alison

hi Sunshine
i had 2 knee surgerys about 4 years ago,,,right below the knee cap and small places aroud it are still numb,,,dr said it was due to athroscopic invasion and sometimes the numbness will go away,,alot of it did,,,,i know youve got alot of other pain in the theigh and leg,,im only trying to encourage the numbness around the knee,,yours may have been a total replacement ,,where they lay you wide open,,or artho,,,where you have 2 little scars,,,

Hi Sunshine Girl,
I got my RSD after surgery. The next day or two after the surgery, had swelling then my shoulder froze up. Took lots of physical therapy, massage therapy to get range of motion back. Then it spread from there to other shoulder etc. Now full body. The best things for me has been physical therapy, desensitization therapy, massage thrapy, and swimming. I live in Arizona with a pool, but even if I didn't, I would join a health club that has a pool and keeps it at least 86 degrees. Swimming has kept me out of a wheel chair. My toes started to curl up and Doc had me do exercises everyday and in about 4 months my toes were touching the ground again. I also use different water tools in the pool to build strength in my arms and legs. A lot of health centers have water aerobics classes. They have high and lower impact classes. Take care, soft hugs, loretta