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-   -   Florida PALS Advocates for ALS Registry Act on Radio (https://www.neurotalk.org/als-news-and-research/31780-florida-pals-advocates-als-registry-act-radio.html)

BobbyB 11-08-2007 07:38 AM

Florida PALS Advocates for ALS Registry Act on Radio
 
Florida PALS Advocates for ALS Registry Act on Radio
Posted by KimHymes <http://als.clinicahealth.com/~KimHymes> Wednesday
November 7, 2007 at 01:16 PM

Leon Peek, an active advocate and PALS from Florida has taken to the
airwaves to continue pushing for the establishment of a national ALS
registry. Having attended The ALS Association's Advocacy Day, Leon
has met with Members of Congress in support of the ALS Registry Act and
was recently interviewed by a local NPR affiliate to further raise
awareness within his community and among elected officials about the
importance of creating a national registry to give researchers the
information needed to better understand ALS. Leon highlights the recent
passage of the ALS Registry Act in the House of Representatives as the
first step in enacting the bill into law, with the second hurdle being
consideration by the Senate. As ALS Advocates, such as Leon, continue to
contact their elected officials and broadcast the need for a national
ALS registry on the radio and in newspapers, support for the ALS
Registry Act continues to build.

Thank you, Leon for your active advocacy and for giving a voice to all
of those impacted by ALS.

Leon's interview is expected to air statewide on Florida Public
Radio this Friday, November 9 and may be broadcast for national airplay
on NPR. Click here to listen to Leon's interview in its entirety.
<http://www.wgcu.org/news/local/archive-story.aspx?id=4054>


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