Terrifying experience-support needed please
 

So July 2012 I had a TBI.

Yesterday I was getting in my car and woke up in the car park on the concrete floor half hr later surrounded by people, 2 of them nurses. I have a condition that causes me to collapse regularly anyway so I thought this was normal. The nurses said my pulse was very slow so they had called an ambulance.

When the ambulance arrived and the paramedics were chatting to me I felt ok and said I would go home. But suddenly I realised some time had lapsed and I wasn't sure what was happening. I agreed to go to hospital.On the way to hospital I was giving my details to one paramedic when I began to feel unwell. My eyes rolled back and a violent long seizure took hold of my body.
The ambulance stopped and called a doctor. I woke up to one paramedic shouting to the other that there was no pulse whilst shoving a tube down my throat. For about 30 seconds I could not breath properly no matter how much oxygen was blasted down my throat. I thought I was going to die. I ripped the tube out and continued fitting. Finally I begged them to not let me die.

I arrived in 'Resus' where they did a CT.This was clear. The seizure was put down to a compact concussion injury. As in compacting on the injury I am already trying to recover from last July. Unlike epilepsy where the episode of the fit is generally forgotten, I remember almost everything. So it is traumatic to say the least. So my medication has been increased to prevent any future collapses. But I do feel the main problem is the exhaustion.

How do you handle exhaustion?
Have you suffered a post concussion seizure that you fully remember, what was it like for you?

Dear peacheysncream ,

I can't remember, but have you had any EEG's, in your course of care?

Your Topamax dosing may need adjusting, or you may be facing a change, sadly.

Those seizures do need some type of controlling, you do not need to face those threats as you are. One of those episodes occurring while driving could leave some very devastating after-effects for you, yours and others.

I hate to suggest this, but you should park your keys until some thorough identification of this problem is carried out and better control is garnered from further testing.

Best Wishes................ :grouphug:

My thoughts are with you.