ot update
 

My gp ruled out Wilson's after the 24 hour copper came back fine. The ultrasound revealed a large gallstone. They want me to have surgery and I said, no.

My pain is in the left side, not the right; I don't have attacks, I have slight pain in the morning that builds all day.

I see a gastro this next week. I know that you are scornful of me, and you are right to be, but I can't do it again.

I think that's overall good news that you don't have Wilson's. I had hoped I had Wilson's because I thought it was easily treated, but my neuro told me it's an awful disease, and not a simple cure via chelation. She said she had seen patients with Wilson's and it's terrible. I don't trust that neuro very much, but that's what she said. It's probably good that you can rule out Wilson's.

Is your GP concerned about your abnormal liver tests? Could it be caused by medications you're taking?

I don't know anything about gallstones, so I don't know if it's okay to leave a big stone in place or not. Have you had surgery for it in the past? Share your worries with the gastroenterologist.

Good luck!

Dear Tena,
 

My husband recently had his gallstone removed. I know you are sick of doctors but they sound like they have worked hard to ease your pain. You might reconsider surgery if you have acid reflux disease or are taking antiacids constantly. Acid reflux can cause throat cancer if left untreated, and a gallstone is a primary symptom. You mustn't let your emotions overule your body needs or you may suffer more than need be.

The choice is yours as you have free will, but as a friend I would hate to see you suffer unnessesarily.

Love,
Vicky

Thanks ladies. I know that I shouldn't be posting here anymore, so appreciate your many kindnesses.

I will talk to the gastro this week, but I don't think that I can go through it again. I mean, I could walk through fire for my kids and husband, but get me in a hospital and I am scared beyond belief. From the rooms, the meds, the separation and the distrust. I trust no one in the hospital. No one. I admire all of you folks who can do what you need to do.

mama