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-   -   First bit of good news in a long time. It's "just" SFN! (https://www.neurotalk.org/peripheral-neuropathy/235544-bit-news-time-sfn.html)

Rancar 05-04-2016 02:18 PM

First bit of good news in a long time. It's "just" SFN!
 
I had a one-year follow up EMG w/Nerve Conduction test and my nerve conduction has improved and "healed" in almost every test. My results are all within normal ranges now.

Neurologist believes I'm left with just auto-immune SFN. I consider this to be a great diagnosis. I was facing a potential future of paralysis and loss of motor function. Now it's just looking like discomfort and loss of sensation.

I know for many of us that's still a hard pill to swallow, but I must say it's a real relief for me and I'm very grateful for the new diagnosis.

I know others on the board have asked why they should bother with the NCV tests, and while it's just a tool, this is the third round of tests for me and seeing the improvement over 18 months is very heartening, even if my feet are currently on fire. :D

ShaggyChic_1201 05-04-2016 02:52 PM

Yay!
 
So glad to hear that! That must have been a long and scary 18 months. I'm glad it's "just" SFPN. :yahoo: :Dancing-Chilli:

:grouphug:
from your "just" SFPN buddies

Patrick Winter 05-04-2016 05:17 PM

Quote:

Originally Posted by Rancar (Post 1210270)
I had a one-year follow up EMG w/Nerve Conduction test and my nerve conduction has improved and "healed" in almost every test. My results are all within normal ranges now.

Neurologist believes I'm left with just auto-immune SFN. I consider this to be a great diagnosis. I was facing a potential future of paralysis and loss of motor function. Now it's just looking like discomfort and loss of sensation.

I know for many of us that's still a hard pill to swallow, but I must say it's a real relief for me and I'm very grateful for the new diagnosis.

I know others on the board have asked why they should bother with the NCV tests, and while it's just a tool, this is the third round of tests for me and seeing the improvement over 18 months is very heartening, even if my feet are currently on fire. :D

Congrats, get yourself some supplements to help with that burning and adjust your diet accordingly.


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