Oaklander video
Hi...I am patient at Mass General with idiopathic NLD SFN. For those interested in this disease there is a video by Dr. Anne Louise Oaklander posted on the MGH neuropathycommons.org website. It is under "For Patients and Physicians", "Video Lectures", "A Name for the Pain". It is very informative and comforting to know that someone "gets it". :) Let me know if you have trouble finding it.
|
Quote:
|
Quote:
[emoji4] Sent from my XT1254 using Tapatalk |
Quote:
|
Quote:
Sent from my XT1254 using Tapatalk |
No definitive cause yet.....
Quote:
|
Wow I am half way through this video right now and I am so IMPRESSED by their normative data for skin biopsy - these are the facts I wanted to be considered when I had my first biopsy at age 19 and they didn't even consider my age when looking at the numbers....with my repeat (now 22) I would love to have it sent to MGH. Also she seems like an awesome doc - wish I lived in Massachusetts! Also this is the first info that provided "rapid heartbeat" specifically as a symptoms of SFN AND discussed "early onset". Man I wish I could see this doctor! Thanks for sharing :)
|
Quote:
|
Quote:
You are lucky to be a patient there. |
Thanks for sharing this video. It's encouraging to see more doctors focus on this complex disease. I also found the MGH neuropathy website very helpful as a screening guide. It lists all the blood tests they use as well as other helpful resources. I've added it to my large and growing list of bookmarks for SFN.
|
All times are GMT -5. The time now is 12:52 PM. |
Powered by vBulletin Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise v2.7.1 (Lite) -
vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.