NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   Newbie from the UK (https://www.neurotalk.org/new-member-introductions/165265-newbie-uk.html)

jeanhf 02-20-2012 09:49 AM
Newbie from the UK
 
Hello everyone!

I have just been diagnosed with severe demyelinating motor sensory neuropathy with no conduction block. Don't really know what that means though I have trawled the internet for information - there's nothing specific to this.

I found this site during that trawl for information and hope someone may be able to shed some light on this or point me in the right direction to find information.

I started having problems some 9-10 years ago with balance issues but no one would take me seriously until late 2009 and I have been undergoing investigations since to discover what the problem is. Now, they have put a name to it and it has made me more confused than ever.

It is not common for doctors here to tell you very much. Patients seem to be on a need-to-know basis and they don't encourage questions. However, I see my consultant tomorrow and I'd very much like to ask intelligent questions to get the answers I need. Any suggestions? Any idea what my diagnosis is about?

Any assistance you could give would be greatly appreciated.
All the very best!
Jean

cinnamon0310 02-20-2012 09:59 PM
Quote:
Originally Posted by jeanhf (Post 853665)
Hello everyone!

I have just been diagnosed with severe demyelinating motor sensory neuropathy with no conduction block. Don't really know what that means though I have trawled the internet for information - there's nothing specific to this.

I found this site during that trawl for information and hope someone may be able to shed some light on this or point me in the right direction to find information.

I started having problems some 9-10 years ago with balance issues but no one would take me seriously until late 2009 and I have been undergoing investigations since to discover what the problem is. Now, they have put a name to it and it has made me more confused than ever.

It is not common for doctors here to tell you very much. Patients seem to be on a need-to-know basis and they don't encourage questions. However, I see my consultant tomorrow and I'd very much like to ask intelligent questions to get the answers I need. Any suggestions? Any idea what my diagnosis is about?

Any assistance you could give would be greatly appreciated.
All the very best!
Jean
Hello Jean,

Its nice to meet you. I'm new here, as well. I've met a couple of new friends, and I enjoy, this site...very informative and great people, as well...

Welcome Aboard...

Tiffaney

MelodyL 02-20-2012 10:01 PM
Quote:
Originally Posted by jeanhf (Post 853665)
Hello everyone!

I have just been diagnosed with severe demyelinating motor sensory neuropathy with no conduction block. Don't really know what that means though I have trawled the internet for information - there's nothing specific to this.

I found this site during that trawl for information and hope someone may be able to shed some light on this or point me in the right direction to find information.

I started having problems some 9-10 years ago with balance issues but no one would take me seriously until late 2009 and I have been undergoing investigations since to discover what the problem is. Now, they have put a name to it and it has made me more confused than ever.

It is not common for doctors here to tell you very much. Patients seem to be on a need-to-know basis and they don't encourage questions. However, I see my consultant tomorrow and I'd very much like to ask intelligent questions to get the answers I need. Any suggestions? Any idea what my diagnosis is about?

Any assistance you could give would be greatly appreciated.
All the very best!
Jean


Hi Jean. Welcome

I see you have found our Peripheral Neuropathy forum. Someone will come along there and answer your post. Don't worry. Sometimes it takes a while.

I wish you well, and again, Welcome to Neurotalk

Melody

Darlene 02-21-2012 12:57 AM
Hello & Welcome!!
 

Jean,

Hello and welcome, :Wave-Hello: happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Rrae 02-21-2012 09:15 PM
Hi Jean!
 
Just shouting out another 'WELOME'. This is such a great place for support and understanding.

The Peripheral Neuropathy forum will give you much insight, and be sure to check out the top of that forum in the 'Sticky' section.

It' great to have you!

Rae
:grouphug:


All times are GMT -5. The time now is 11:56 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.