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-   -   Where are the 3 Mayo Clinics located? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/15274-3-mayo-clinics-located.html)

dreambeliever128 03-11-2007 06:33 PM

Where are the 3 Mayo Clinics located?
 
I tried to find them but all I do is get into sites where they are trying to sell their books. I actually had to turn my computer off to get out of their website. Couldn't exit.

This is for a friend that I am trying to help. I know one is in Arizona and I can't think where the other two are.

Have any of you had luck there. I was honest with this friend. I have talked to many people who went there and had no luck but I thought it might be a place she could go for help.

Thanks for the help.

Ada

fmichael 03-11-2007 07:05 PM

Dear Ada -

The main site of the Mayo Clinic is located at 200 1st Street, S.W. Rochester, Minn. 55905. Their primary website is www.mayoclinic.org although for some reason, I'm having trouble getting connected right now.

There are also major centers in Scottsdale AZ and Jacksonville Fla., along with a host of smaller feeder clinics in the upper Midwest and a facility in one of the Persian Gulf States, Dubia if memory serves.

If your friend is planning on traveling anyway, s/he might as well go to to Rochester, but probably on or with the referral of a treating physician. (It's not required but it's certainly advisable.)

Mike

Jomar 03-12-2007 01:27 PM

http://www.mayoclinic.org/contact/


Contact Mayo Clinic

The best way to contact Mayo Clinic about a medical concern is by phone. We're sorry, but we cannot advise people about their medical conditions without an examination by one of our physicians.

Jacksonville, Florida
Mayo Clinic
4500 San Pablo Road
Jacksonville, FL 32224
General Number (904) 953-2000
Hearing Impaired (TDD) (904) 953-2300
Appointment Office (904) 953-0853
Appointment Office Fax (904) 953-2898
Insurance and Billing (904) 953-7058
International Services (904) 953-7000
International Services Fax (904) 953-7329
Medical Records Requests Fax (904) 953-2242
Records request form(PDF)

St. Luke's Hospital
4201 Belfort Road
Jacksonville, FL 32222
General Number (904) 296-3700
Medical Records Requests Fax (904) 296-4929
Records request form(PDF) (904) 296-4929

Rochester, Minnesota
Mayo Clinic
200 First St. S.W.
Rochester, MN 55905
General Number (507) 284-2511
General Fax (507) 284-0161
Hearing Impaired (TDD) (507) 284-9786
Appointment Office (507) 538-3270
Insurance and Billing (507) 266-5670
International Services Appointments (507) 284-8884
International Services
Appointments Fax (507) 284-3891
Medical Records Requests Fax (507) 284-0161
Records request form(PDF)

Rochester Methodist Hospital
201 West Center St.
Rochester, MN 55902
General Number (507) 266-7890

Saint Marys Hospital including
Mayo Eugenio Litta Children's Hospital
1222 Second St. S.W.
Rochester, MN 55902
General Number (507) 255-5123

Scottsdale / Phoenix, Arizona
Mayo Clinic
13400 East Shea Blvd.
Scottsdale, AZ 85259

General Number (480) 301-8000
General Fax (480) 301-7006
Appointment Office (480) 301-1735
Insurance and Billing (480) 301-7033
(800) 603-0558 (outside Phoenix)
International Patients Center (480) 301-7101
International Patients Center Fax (480) 301-9310
Medical Records Requests Fax (480) 301-7282
Records request form (PDF)

Mayo Clinic Hospital
5777 East Mayo Boulevard
Phoenix, AZ 85054

General Number (480) 515-6296
Business Office Fax (480) 342-1138
Hearing Impaired (TDD) (480) 342-0169
(480) 342-2660
(480) 342-1882

Phone, E-mail Directories

Mayo Clinic does not have a public directory of staff phone numbers or e-mail addresses. To contact someone, call the main number at a Mayo location, and the operator will connect you. Biographical information about Mayo staff physicians can be found on medical department pages. There is also a research staff directory on www.mayo.edu.
Electronic Contact Form

Contact Mayo Clinic about problems, questions or comments.

dreambeliever128 03-12-2007 01:32 PM

Thank you Mike and Jo.
 
I will send this on to her so she can check them out.

I was wondering if anyone on here has been to any and if they did you any good.

I have talked to several people that said they didn't do a thing for them. One was a 70 year old man that had the TOS and RSD. He said he spend a lot of money at the one in Arizona for nothing.

I know of someone that use to be on the TOS forum that they did her son more harm then good in Minn.

I was also told by the one in Minn that you have to have a diagnoses for them to even treat you. I didn't understand that.

Any good reports?

Thanks again Jo and Mike.

Ada

Debby 03-15-2007 04:14 PM

Ada,
I have been to Rochester MN when I lived in NW Iowa. BUT I was not there for RSD. I went due to dry eyes due to Sjogren's Syndrome. I had not been DX'ed with SJogren's at that time but that happened in 8/03. I hated the treatment I had to have for it but I was treated with courtesy & with professionalism. I had to spend the night & go back to have the eye surgery checked the next morning so I stayed in a motel & received the hospital rate. My daughter went with me to drive home. No way could I drive home. I was in too much pain with my eye patched.

DebbyV

Imahotep 03-15-2007 08:10 PM

I just called MN and they had no literature or anything to offer. My doctor says they have an interdisciplinary approach.

fmichael 03-16-2007 12:24 PM

Of all of the people in Rochester, I found the best group for RSD in the Mayo Clinic to be in the Department of Physical Medicine. Their website (which is down at the minute) is http://www.mayoclinic.org/physicalme...t/doctors.html. The guy I saw, Keith A. Bengtson, M.D., runs a hand clinic there, but seemed to know as much about RSD as anyone I met at the Mayo Clinic (including an uber-specialist/peripheral neurologist, but I won't go into that). If you can be seen by the Department of Physical Medicine, perhaps on the referral of your current treating physician, I would go for it.

I have somewhat less confidence in the the Mayo Clinic's pain mangt. program, where it has a long history of teaching patients with chronic pain how to basically grin and bear it. They're real hawks on the use of long term opioiods and should in my opinion be avoided, certainly as a point of entry into system. If you get referred to them for an in-patient ketamine infusion, that's fine, but it's not where you want to have you intial consult.

Mike

P.S. With reference to my subsequent post, Dr. Bengtson is not the Mayo Clinic doctor who screwed me up the first time I was seen for RSD. I saw Dr. Bengtson on a subsequent and much happier visit. Nevertheless, the cautions set forth below would probably apply to whoever you are seeing there. I just happen to like Dr. Bengtson as a person.

buckwheat 03-16-2007 12:28 PM

It's Just Me,

I think it I went to a MAYO Pain Doc. I would ask him if he thought someone should bite a bullet going into OR. Hugs, Roz

fmichael 03-16-2007 04:13 PM

follow up re Mayo Clinic
 
One huge word of caution: the Mayo Clinic is a large organization and in order to assure that the same patient seeing any one of many doctors would - in theory - get the same diagnosis, has apparently adopted some fairly rigid standards under which a clinical diagnosis of RSD can be made. (At least that's one explanation.)

As a result, if you are not presenting with a "classic" case, e.g. differential tempratures, redness, sweating, swelling etc., they may not make a finding of RSD, even though your home town pain doctor has already managed to get you great relief with sympathetic blocks. That screwed me up with my disability carrier for a couple of years until my symptoms progressed to the point that (1) Robert J. Schwartzman, MD saw me in Philadelphia and produced a very detailed report saying that I in fact had RSD and (2) I went back to the Mayo Clinic where I was seen by someone outside of the whole pain treatment network and he was able to make a diagnosis of RSD, along with the things I was seeing him for, and that ended the discussion.

So, if there are any issues of public or private disability coverage and your RSD has "unique" aspects, I would give it a second thought before going to the Mayo Clinic.

Put it another way, all things considered, you might want to be in Philadelphia.

Mike

dreambeliever128 03-16-2007 09:15 PM

Thanks for this help,
 
I sent this info on to my friend. She is just very desperate for help and we are looking for any we can find for her.

Mike, Like you I have seen 3 hand surgeons and they were up on RSD more then any Drs. I have ever seen. The first one I saw was the best I had seen but he has left this area. I have one in Denver and one in the Springs and they are excellent.

I've said on here a lot of times about PM DRs. I have not seen a good one around here or heard of one. This ENT that is going to put the VNS in me knows more about RSD then the PM Drs.

I just donot get it.

Ada


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