Any experience with IVIG?
I am still researching possible treatments and wondered if anyone has had any experience with IVIG.
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I've had IVIG several times for exascerbations. I can no longer do IVSM. The infusion takes longer (4-5 hours), but the only side effect I ever had was a headache . They can pre-medicate you with tylenol and benadryl. I got a 5 day tx each time. It was just as effective as IVSM for recovering from a flare. It is alot more expensive, but my insurance covered it.Thank Goodness!! I would have no problems doing it again, if I had too.
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I know there are others that have done this....bumping back up for you!
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Still wondering if anyone uses this on a regular basis.
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Sorry barb wish I could add more to this other than thats my docs next suggestion to me and my treatment,
I had one treatment a two years ago at hospital, its strong stuff as far as my body is concerned. I am done with the oral steroids as is my doc, and the debate of wether copaxone is doing me any good is also being debated by us both. I hope you can get some relief and some good answers :hug: |
Barb
I know of a couple of people who have had good luck with IViG but don't belong to any forums. My neuro wanted me to try it, but after some further investigation, it was decided that due to my numerous allergies, it was probably not a good idea. That's why I opted for the clinical trial I am currently in. Here's a link to an article about it that may give you some information about the efficacy of it. I do believe there is currently a clinical trial ongoing for it. http://clinicalevidence.bmj.com/cewe...2/1202_I22.jsp There are at least 7 different formulations of IViG, including one for diabetics. IViG is Intravenous immunoglobulin. It's commonly used to treat Guillain Barre. I hope this information helps you. I know that you are looking for first hand experience which is always good. Hopefully there will be some when everyone comes back after the weekend! |
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There are actually thousands of patients that use this treatment every month for a variety of clinical situations. The majority of the side effects are related to the rate of infusion and how the particular product was made (the amount of IgA that is in the product). Hope this little information helps!:). |
Barb, there is a member on another forum who contracted aseptic meningitis from IVIG. This is listed as a possible side effect. I have not tried it myself.
Blessings, |
This is a fairly old thread, but I thought I'd post this here while it is has been resurrected:
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I think there might be some folks over on the PN board that have tried IVIG.
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