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-   -   Does Rebif make MS worse for you? (https://www.neurotalk.org/multiple-sclerosis/189425-rebif-ms-worse.html)

skywalker1988 06-03-2013 04:24 PM

Does Rebif make MS worse for you?
 
I've been on Ribif since the early part of April and I was wondering if this has made anyones MS worse than it was. It seems so to me, but maybe Rebif needs more time to work in my body. Ever since I've been on Rebif, I've had MS Hugs and alot of pain to go with it. Plus the places where I put the shots at are all red and sore

EddieF 06-03-2013 07:17 PM

The 2 months I tried it, I hated it. Didn't make my MS worse but didn't help it either. However I know someone on it for years & they're stable so, good luck. Drink 1/2 gallon water per day.

Tecfidera is what you should try tell doc.

skywalker1988 06-03-2013 07:49 PM

I drink about 1 to 2 gallons of water a day :)

SallyC 06-03-2013 09:08 PM

I'd probably give it 6 months (If you can) and if it is not helping you
to feel better or to stop new lesions, then I would chuck it and try
something else. Not all DMDs are for all peeps with MS.

GladysD 06-03-2013 10:02 PM

Quote:

Originally Posted by SallyC (Post 989172)
I'd probably give it 6 months (If you can) and if it is not helping you
to feel better or to stop new lesions, then I would chuck it and try
something else. Not all DMDs are for all peeps with MS.

Quote:

Originally Posted by skywalker1988 (Post 989106)
I've been on Ribif since the early part of April and I was wondering if this has made anyones MS worse than it was. It seems so to me, but maybe Rebif needs more time to work in my body. Ever since I've been on Rebif, I've had MS Hugs and alot of pain to go with it. Plus the places where I put the shots at are all red and sore

I didn't take Rebif, I was placed on Avonex. That lasted a couple of months. Then I have an optic neuritis flare up. And had blood work, discovering that I had developed anti-bodies to interfurons. That was my one and only interferon and it didn't last much longer than a couple of months. I'd been on Copaxone prior to Avonex. Has your neuro considered Copaxone? Have you considered Copaxone?

Along with the upcoming MRI, will you neuro also have bloodwork done, to test your blood levels, too?

used2party 06-03-2013 10:52 PM

I think it can take 6 months for the meds to really take affect like Sally said.
When i started Avonex, I had a terrible time after the shots, it actually made a lot of my symptoms feel worse, especially my vision and the pain. I think the vision was from the fever I would get about 4 hours after the injection, and the pain was the flu like symptoms. Would be in some weird spots like side of my ribs, spots i never had pain before.

Such problems have subsided since i stopped having side effects, but like others have said sounds like it can be the MS hug. Take it up with your Neuro when you see them.

The injection sites can be having a reaction where they are red since Rebif is administered just under the skin.

Hope everything gets better for you!


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