New and frustrated!
 

I have the anchr ganglionic neuronal antibody that causes autonomic disfunction. I have pots along with severe nerve pain and other neuropathies. I have tried every medication and iv steroid the mayo clinic has suggested and have had bad reactions to all of them. Ivig is the only thing left to try but my insurance denied it since the beginning two years ago. I have gotten to the point where I have no other options and I need this treatment. Does anyone have any recomendations? I was curious about going international and getting treatment elsewhere if it was cheaper. Does anyone have any experience with this? I haven't had much luck finding out about it on the Internet.

Hello Katharinefelicity,

Welcome to the NeuroTalk Support Groups! :Wave-Hello:

Here is the link to the

Peripheral Neuropathy Forum

and

PN Tips, Resources, Supplements & Other Treatments SubForum

You can also try using the forum search feature below for terms specific to your own health issues e.g. ganglionic neuronal antibodies. That will bring up past posts or threads that may be relevant.
http://neurotalk.psychcentral.com/search.php

I'm sure you'll find a wealth of information and a lot of support from the members here.

wishing you all the best.

Hello & Welcome!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug: