help with myoclonus
 

Hi,
I started having myoclonic jerks about 4 months nowI think I know the why but Ill just stick to how to help.
read a article from the epilsy foundation about the triggers.WOWthe light came,lol
Culprits.To much coffee,now decaf tappering off reg.Sleep was better now with less caffeine.Make sure to eat a good balenced diet low in sugar.
So far the jeks have mimumized.Keep my fingers crossed
Im a PD patient also and there is a chance it might be connected.I will know more as time proceeds.
I love to do puzzles like this .Figured out my MI with help of DR. Low.I Have little nervous symptoms(depression) now even with PD and the jerks.
I sruggle with my temper but I always win the battle now
Men live to act not to philosophize.Dr.Abraham Low founder of RI
Best wishes.
john

Hi John,

I've had myoclonic sz. with some jerking around but after I started taking Vimpat 300 mg. a day the sz. stopped. I also have absence and complex partial sz. also but they were greatly reduced once I started vimpat. Another thing that has helped that you may want to try is Vitamin B12 1000 mcg. once a day. B12 helps calm a persons nerves and it has greatly reduced my sz. over the yrs.
You may want to ask your Dr. to do a sleep study on you along with an e.e.g. at the same time. I had this done and that's when they found out I was having sz. in my sleep this may be what's causing the problem for you just like when someone has a sleep disorder it can sometimes trigger sz./
I wish you the best of luck and May God Bless You!

Sue

Hi Sue,
I will contact my doctoron thesleep studyI had one a few years ago and have been using a cpac which helps with my apnea.Ill have to maybe do one again along with the cpac.Ill tell my doctor about the drug.My jerks are unpridictable thought i had it with so many things but still come s backstill better now with low caffein.Thanks so much for replying ill keep in touch
john

Hi John,
If you have sleep apnea that could be a lot of the problem because lack of sleep along with stress are the 2 main things that can trigger sz. for a person.
When you have you sleep study done make sure that the Dr. is doing a e.e.g. and a e.k.g. at the same time you are having the sleep study done. I was told to stay up all night before I had the study done and this is what really helped my Dr. find out that I was having sz. in my sleep 1-2 hrs. before I would wake up each day.
Also if you use a cell phone often that has been known to trigger sz. for some people. I found out about this when I noticed I was having a lot of sz. when there were many people around using their cell phones at the same time and I ended up having sz. My Dr. did a e.e.g. on me and I didn't know it but during part of the e.e.g. she purposely had staff use their cell phones and each time they did the e.e.g. wave spiked up high. This showed that I was cell phone sensitive meaning that the frequency the cell phones are using are triggering sz. for me. Thanks for keeping me posted. I wish you the best of luck and May God Bless You!

Sue