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-   -   Calling All Low Dose Naltrexone Experts (https://www.neurotalk.org/parkinson-s-disease/19852-calling-low-dose-naltrexone-experts.html)

caya 05-17-2007 12:16 PM

Calling All Low Dose Naltrexone Experts
 
Where does one get LDN? Is it Rx or OTC? Is it liquid or solid form? Thanks for any info you kind folks can throw my way.

Caya

Curious 05-17-2007 12:31 PM

caya...i sent a copy of your post to one of our members. he has been on ldn for awhile. ( for ms) he is traveling right now, so it might be a few days.

Sharship 05-17-2007 06:49 PM

low dose naltrexone
 
Hi...I'v been on LDN for a few years....and I am in remission with my MS!
The naltrexone is a capsule and it is compounded at the pharmacy. The "low dose" is what makes it unique ...in very high doseages, naltrexone has been used to control substance abuse...in very low doses it has been proven to favorably impact autoimmune diseases, cancers and other chronic diseases. Look up Dr. Bihari's web site at: www.lowdosenaltrexone.com

Some medical docs/neuros aren't willing to prescribe this medication....others, however, realize the positive impact it has and have no problem prescribing it. I have found a doctor of osteopathy who prescribes it for me and he gets the prescription filled at a compounding pharmacy that mails it to me. The cost is about $1 a day....$30 a month. Worth every penney! Good luck finding a doc who will prescribe it for you. Sharon

LarryLDN 05-18-2007 12:18 AM

LDN = most awesome medical breakthrough since penicillin -- Skip's Pharmacy

thebrick 05-18-2007 07:44 AM

Ldn
 

As a multiple autoimmune (7) disease patient who also has bone marrow cancer, LDN has been the ONLY thing that has REALLY helped. I will tell anyone that listens my story and what LDN has doen for me. I have talked to dozens of people that have started LDN after listening. For the first time in nine years, my cancer is in remission... and ALL of my diseases are getting better. I have been on it about six months. I am able to reduce daily medications and also my IV treatments will be reduced shortly.

If there is anything I can do to help or any questions I can answer, please just yell.
Barbara Yodice, Founder of the Autoimmune Information Network
www.aininc.org :D

SammyJo 05-18-2007 11:44 AM

LDN & Parkinsons
 
I personally know 4 men with Parkinsons who have started LDN at my recommendation and all are doing better. Two since Jan 2007, the other two started in the past 2 months. The biggest improvement is in sleep quality, they are "sleeping like a baby". Also large reduction in PD medications.

NIH had a meeting 4/20/2007 where the discussed the research potential for LDN across many conditions, including PD.

A human trial has begun at UCSF for MS, and one is ongoing in Italy.

We are making progress!

SammyJo
http://LDNers.org

Curious 05-18-2007 11:50 AM

caya...you could post this on the ms forum here too.

http://neurotalk.psychcentral.com/forumdisplay.php?f=17

Maureen 05-18-2007 01:51 PM

Ldn
 
Can you tell if the LDN is making you feel more fatigued, or, is it in fact, making you feel a bit more energetic?
Maureen

ashleyk 05-18-2007 03:16 PM

Ldn?
 
Hi Caya, if you want to find more information on LDN and how to go about obtaining a prescription etc, your best bet would be to join the yahoo ldn chat group below. There are some people there that can help but the site is somewhat scattered. The problem with LDN is that most docs will not prescribe and it can be expensive if you have to pay a doc for a consult for an Rx. In the meantime, maybe you could look at the "dextromethorphan" thread on this site.
Regards, Ashley
http://health.groups.yahoo.com/group/lowdosenaltrexone/

naloxone=naltrexone, more or less
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract

dextromethorphan, interesting
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract

geraldo 05-18-2007 10:16 PM

Does LDN conflict with any of the standard PD meds?
jerry


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