![]() |
Doctor recommended DBS
At my dr's appointment today, he recommended DBS. He is setting me up to be assessed at the Toronto Western Hospital.
I want to have this surgery but need some encouragement and facts. Anyone hear good things about the team at the Toronto Western? |
hello dear one -
Quote:
it also seems - more problematic for women - you will hear jeers and cheers, but this surgery is not by anymeans a cure. I have known many people who have undergone this, I am not in favor of this ... take your time to decide. |
I am not familiar with the team at toronto but I am familiar with the surgery. I had it in 2001. I had mine done at Stanford Medical Center in California led by Dr. Gary Heit. I have had the battery packs replaced last year as well as one stimulator and wire due to a short. If I to do it over I would have it done again in a heartbeat.
Tena is correct in saying it is not a cure by any means, however I would add it is the closest thing we have now. Overall I had a 92% improvement of my symptoms. It reduced my severe dyskinesia to almost non existent, helped with tremor, rigidity and freezing.Unfortunely it wont help with falling. I am sure Charlie will have some input for you also. Dont be afraid to ask questions, for example; how many DBS surgeries have they done, what is their success ratio, infection ratio, how do they locate the target area? These are some to start with. Good luck. |
I heard...
that they are finding that putting additional leads in other places also helps with symptoms not normally helped by DBS, such as gait and balance. I would definitely ask my doc/those docs about this, and get the most recent research about it that I could. If you go do it, might as well have every symptom that can be helped, taken care of! Good luck.
|
Quote:
NO one that I am aware of has a DBS of the STN and PPN. YOu either get o-one or the other. The PPN target( For balance and gait) is still experimental as far as I know. My group is a wealth of info and support, it is at: http://health.groups.yahoo.com/group/DBSsurgery/ feel free to join us and ask anything you want. Charlie, DX with PD 1990. bi-lateral DBS-STN in 2001 at UCLA |
Quote:
|
Andres Lozano: Parkinson's, depression and the switch that might turn them off
[QUOTE=bluedahlia;470250]At my dr's appointment today, he recommended DBS. He is setting me up to be assessed at the Toronto Western Hospital.
I want to have this surgery but need some encouragement and facts. Anyone hear good things about the team at the Toronto Western?[/QUOTE I wanted to share this link about advances in DBS. I hope the group finds it interesting. Steve http://www.ted.com/talks/andres_loza...s+HD+-+Site%29 |
Thanks Steve ...
I did find this interesting.
I also found the comments on the talk on the web page, interesting as well. A more bigoted, close minded, ignorant and extreme bunch you would be pushed to find anywhere. Especially enjoyed the comment of pwp are imperfect and non treatment is a means to control reproduction of this weakness. Laughable if it wasn't so pathetic. Neil. |
All times are GMT -5. The time now is 03:59 AM. |
Powered by vBulletin Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise v2.7.1 (Lite) -
vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.