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-   -   PCS like symptoms desperately need opinion /advice (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/253673-pcs-symptoms-desperately-opinion-advice.html)

Slapstick 05-23-2019 12:00 PM

PCS like symptoms desperately need opinion /advice
 
Hello everyone,

I just discovered this nice community, it's great to see such active support forums :)

I'm a 37 yo male, here is my tale:

15 years ago I had a mild concussion following a car crash, with symptoms appearing the next day
, such as noise and light intolerance, fatigue and lightheadedness, memory issues, reading and vision issues, brain fog feeling.
These symptoms lasted a week and disappeared gradually in a few days.

Fast forward 15 years, this January, I was at work and experienced a migraine with aura for 30 min, ( bright colored zig zags on both eyes slowly fading to the sides).
I never had a migraine before and never had one similar since that episode.
The next day, I started to experience the same symptoms as when I had my concussion ( but no hit on the head).
In 3 days, it's like a veil came onto me progressively, very strong noise intolerance (it actually hurts), light intolerance, heavy brain fog, constant light headed Ness, balance issues and persistant fatigue.
I have a mental processing slowdown, forgetting words and slurred speech, and constant attention deficit, even simple tasks or conversations are very exhausting mentally.
I have trouble focusing between far and close objects, also experiencing a kind of constant mild double vision as if my eyes aren't "synced", same for tracking and reading text.
Rapid Movement on TV or screen makes me dizzy as well as subtitles.
Staying in bed lessens the symptoms, as well as nighttime ( for some reason the brain fog is less present in the evening /night).

For a few days, I thought these symptoms were because of the Migraine since I never had one, but a month later nothing had changed so I decided to go see a neurologist.
I did psycho motor and neuropsy evaluations, both were below the norm for my age, but EEG and MRI didn't show anything.

The neurologist then concluded it could be due to stress or anxiety.
I had to stop working and playing sport as it's impossible for me in this state to perform any brain demanding activity.
It's now 4 months later, and all symptoms are still there, I'm resting all day long, I'm not anxious, but feel frustrated because it's like my life has been taken from me!

I know it's not a "physical TBI" per say, but it's striking how I feel exactly how I felt 15 years ago.. except it just won't leave me... If you guys have any insights / advices, it would be much appreciated! :hug:

Slapstick

kiwi33 05-23-2019 04:39 PM

Hi Slapstick

Welcome to NeuroTalk :).

The TBI/PCS forum is very active so I am sure that you will get helpful suggestions from other members.

Best wishes.

Jomar 05-23-2019 11:50 PM

What kind of job do you do?
What kind of sports?
Any injuries of any kind , even if you don't think it is related?

And are you on any medicines - prescribed or OTC?

Mark in Idaho 05-24-2019 12:43 AM

Your migraine with aura sounds more like an occular migraine which is a form of TIA. I had one last year.

If this happens again, think stroke and seek immediate medical attention.

My doctor told me to get back on my aspirin therapy.

Was the MRI without and with contrast?


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