clotting mutation and TOS
So I officially confirmed my diagnosis of TOS today at PT. I had a grip strength of 28 in my left hand and 50 in my right which are apparently low. I have also lost the ability to hold my fingers together or apart completely, the same goes for holding my wrist in place as well. I had no idea on those since I can still move them, apparently it is a neuro problem not muscular. I also have significant loss of range of motion everywhere including my neck where I was around 30 degrees at all angles. All of the maneuvers for TOS were positive with numbness and pain.
My question for y'all is I am predisposed to clotting due to a prothrombin mutation P20210A if you want to look it up or have heard of it. My therapist said not to worry about it. But I am also exhibiting some of the vascular TOS symptoms cold hands (my hands were NEVER cold before this) and blanching. As well as some slight swelling I think. I am worried I might have a clot or could be throwing small clots on and off and I don't want to get one in my lungs or something. I don't know how to tell my doctor, like look you might not be worried but I kind of want to make sure that there isn't a clot and that I don't have the vascular TOS. Do you guys think it is important to distinguish the two or will the treatment be PT either way? Also I would like to vent about how much PT sucked the first day!! Thanks That is all.... Tory |
You're worried about telling that to your GP? I can understand. But if you tell it to a "vascular specialist" or "vascular surgeon" they'll understand what you're asking. Given that you have a clotting mutation and TOS, I think you should see one soon to get more information.
Keep in mind that surgeons aren't just for surgery. They are also for consultations in their area of expertise. I didn't really know that before all this TOS stuff. Good luck. |
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I have heard of P20210A as it is genetic and similar to mine. Do you have one or two mutations? If you have one your chances of clotting are 4/8 from memory but if you have 2 genes affected it's higher again. Your more than welcome to pm me if you want to ask more about my experience. |
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