LAST update on 'limb shaking": Essential Myclonus
 

Dearest PN Angels,

My [size=14pt]CT Scan [/size]with contrast dye showed no abnormalities of my carotid arteries, including branches above my neck.
So my limb shaking is not from temporary occlusion of the carotid artery (by head position, etc) leading to loss of oxygen to the brain, leading to Temporary Ischemic Attack, causing the limb shaking. This is a real syndrome and must be found and corrected as it can be dangerous, even fatal.

My [size=14pt]EEG[/size] this morning was perfectly normal. YES!

So why do I have limb shaking, specifically my left arm and hand?

I've been doing some searching and I've come up with a possible match to:

Essential myoclonus occurs in the absence of epilepsy or other apparent abnormalities in the brain or nerves. It can occur randomly in people with no family history, but it also can appear among members of the same family, indicating that it sometimes may be an inherited disorder. Essential myoclonus tends to be stable without increasing in severity over time. In some families, there is an association of essential myoclonus, essential tremor, and even a form of dystonia, called myoclonus dystonia. Another form of essential myoclonus may be a type of epilepsy with no known cause.

Myoclonus Fact Sheet

Myoclonus refers to involuntary contraction of the muscles: hiccups are a common example, and the sudden jerking just as you're falling asleep.

My younger son has had essential tremor of his left hand since his early 20's. It is quite marked, but has not progressed in severity. He is now 46.

I had three episodes yesterday of the tremor of my left hand and arm, one quite strong and two very mild ones.

So perhaps essential or idiopathic myoclonus, which is purely descriptive.

I can live with this, and am so glad horrid things have been ruled out!

Hugs, ElaineD

Hi Elaine

So glad to hear you have been able to rule out any potentially dangerous condition associated with the Essential Myclonus. That must be a small light of relief in the context of everything else you're dealing with.

My nephew (19) has had Essential Tremor since about age 15 which developed as part of a genetic condition - 47XYY Syndrome. It got so severe he now has to take beta-blockers to reduce the tremors enough to manage daily functions but he is doing well enough to maintain his studies.

Hopefully your tremor continues to 'behave' itself and remain manageable without medication.

:hug: bluesfan