NeuroTalk Support Groups - Is it fibromyalgia?

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Is it fibromyalgia?

Hello,

For four years I have had pain, stiffness, fatigue, cogfog, IBS, eye/vision problems etc etc.

Trigeminal neuralgia 20 years ago, nystagmus 30 years ago. Finally saw a doctor, rheumatologist, who specialises in fibromyalgia. He diagnosed me, even though I have NO tender points!!

I saw a neurologist 3 years ago - no MRI, too old for MS.

Am still wondering if diagnosis is for real??

Nothing is helping, what can I do??

Thank you:)
Lesley
NZ

Doesn't really sound like it. Since you don't have tender points. I'd find another neurologist. You need some answers. The "too old for ms" is bs too!

the newest treatments and diagnosis in US

does not include trigger points anymore.

They are no longer considered valid criteria.

Fibro is now considered a CENTRALLY mediated disorder. That is in the brain, there is some genetic reason for pain signals to be
interpreted higher in Fibro patients than non-fibro patients.

Peripheral issues are considered pain generators now~~examples are trauma, vaccines etc. Peripheral inflammatory pain generators are still treated in the periphery (arthritis etc), but most treatments today deal with central pain centers in the brain.

Hello and Welcome to NT Lesely! Well, I currently see a Rheumy for my Fibro and I agree that my pain levels are very low. W/my FM, I also experience flares during changes in the barometric pressure, so when it rains, it really does pour.

I hope your Dr's work w/you and you can get some relief, b/c FM is miserable. I am so anti meds myself, but finally couldn't take it anymore and now take meds to help w/the discomfort/fatigue of it. Good luck and I'm glad you found us.

Thank you all for your replies.

I guess I just make the best of each day and see what happens!

So sorry that other people have to experience this also.

Gentle hugs
Lesley
NZ

Quote:

Originally Posted by mrsD (Post 444844)

does not include trigger points anymore.

They are no longer considered valid criteria.

Fibro is now considered a CENTRALLY mediated disorder. That is in the brain, there is some genetic reason for pain signals to be interpreted higher in Fibro patients than non-fibro patients.

Peripheral issues are considered pain generators now~~examples are trauma, vaccines etc. Peripheral inflammatory pain generators are still treated in the periphery (arthritis etc), but most treatments today deal with central pain centers in the brain.

Hi Mrs. D. I know there has been research indicating fibro is from a brain 'screwup' and also I've heard that very low serotonin is involved. (Which wouldn't surprise me at all. If I didn't take meds for my serotonin level I'd be miserable all the time.)

But, I have searched near and far on the internet at fibro sites and they are all still saying that the trigger points are a major part of the diagnosis. Can you point us to the info? Why aren't the fibro sites mentioning more of this???

Thanks! :hug: