NeuroTalk Support Groups - So, what do I do now that my Fun Rep is done?

Quote:

Originally Posted by Hopeless (Post 1166963)

How many docs have you seen since you first applied? How frequently? What specialties? Can you list the specialties for us. (NOT the names of the docs.)

First applied mid May 2015:

May 5, 2015 - saw my shrink

May 7, 2015 - Saw neurologist at a University - therefore he was supposed to be one of the best in the country

June 2015 - took a much needed break from doctor appts. Worked on finishing up divorce stuff. Selling the martial home. Finishing my CH 7 bankruptcy. RESTED as told to by May 7th appt above.

July 7, 2015 - saw my shrink

July 8, 2015 - saw the above neurologist

Aug 17, 2015 - saw my GP (I shared a New England Journal of Medicine article with my GP. It was written by two Ohio State neurologists. It was titled, "Painful Small Fiber Neuropathy" - They called it debilitating and hard to treat. They also stated that neurologist is needed to treat it. Follow one of the many available drug tables for the condition and trial and error it - until you find something that works. The authors stated the best one can hope for is a 50% reduction in symptoms. So, since neurologists have no been helpful for me (except the one who did the skin bio so I FINALLY had the proper DX), I asked my GP, after showing him this part of the article - could 'he, me and my shrink be a team to work on this? No neurologist needed? I do not want to 'roll the dice' again and see if I can get a good one." He agreed.

Aug 24th, 2015 - saw a talk therapist for my head

Upcoming appts: Sept 17, 2015 - see my GP, Sept 10, 2015 see my shrink

How many docs did you see prior to your application? How frequently? What specialties? Can you list the specialties and frequencies of each for us.

Here is going back just one year. If we go back two years - it is pretty much a repeat of the first year:

I'll go back to 3/7/14 - Arthritis doc (don't know how to spell her speciality) - (Her DX's - polymyalgia rheumatica, joint pain - mult jts, joint effusion-mult jts)

3/25/14 - FOOT DOC -FRED - 1 appt - DX: hered sensory neuropathy (referred me to the above APPT)

3/31/14 - Doctor of physical med/rehab - did an emg/nct - DX was: Tarsal Tunnel Syn, Lumbosacral neuritis and abnormality of gait

May and June of 2014 - foot doc JOE - 2 appts (DX - Achilles tendonitis, Plantar Firbro..., Tarsal tunnel syn - he sent me to have the below PT done)

June/July 2014 - (Nine PT sessions that included ultrasound - DX was pain in limb - also had 185 bucks worth of custom made orthotics made - waste of $$$)

6/18/14 - neurologist (nothing wrong with you - however DX was Sprain of knee and leg, skin sensation disturb)

8/5/14 and 11/24/14 GP (joint pain in hand/schizoaffective - unspec - READ - if I can't figure out what is wrong with your feet - I'll simply say you are 'crazy'. I mean after all - you do see a shrink... - same thoughts with appt 2 - joint dis nos-ankle, somatization - again - he is 'crazy' nothing wrong with his feet . . .)

NO OCT 2014 APPTS - I UNEXPECTEDLY GOT THROWN OUT OF MY OWN HOME VIA DIVORCE DECREE - SO I WAS KIND OF BUSY

2/20/15 and 3/3/15 - Appt with shrink

3/11/15 and 4/8/15 - Foot Doc Gary his DX's - Tarsal Tunnel, Venous insufficiency NOS, pain in limb, valgus ft deform NEC - HE SENT ME TO HAVE THE TEST BELOW DONE

3/31/15 - ENDOCRINOLOGIST | WATKINS MD,STEVEN C – Diagnosis 459.39:CHRON VEN HTN W OTH COMP (Venous Doppler)

4/8/15 - Dr. SARAH (Neurology/UNIVERSITY Med) – Diagnosis 356.2:HERED SENSORY NEUROPATHY, 782.0:SKIN SENSATION DISTURB, 729.5:PAIN IN LIMB - BIOPSY SKIN - skin bio results: SFN

4/7/15 Dr. XXX (Neurology/UNIVERSITY Med) - Medication :GABAPENTIN – DX: SENSORY POLYNUEROPATHY

I'll count up numbers later. Basically, lots of DX's and TX's. Finally got a correct DX via skin bio . . . so now we are playing with my drug mix to try to find one that works well. Started with 900mg's of Gabapentin - six months later it is at 3000mg per day . . . With me feeling very sedated and in a mental fog.