Trying to rule out MS in my 13 yr old daughter
 

My 13 yr daughter went numb in the lower face, neck, torso and underside of her arms about three weeks ago, and she hasn't gotten better.

She has also been having "pulsing" headaches, and EXTREME vertigo. She is hardly eating, and is exhausted but can't sleep for the vertigo. They have her on SERC now, and it is helping her somewhat.

The numbness spread to her underside of her legs, and both feet last weekend. She had a cold too, with a fever of 103 for most of 3 days, so I wasn't trying to assess anything new over that time.

She had been to the Children's Hospital, and the pediatrician neuro has kept in touch weekly. She phoned Monday and wanted her admitted, but I pushed it off till Tuesday. Unfortunately another emergency came up in the meantime, so they gave her bed away.

She is scheduled for a MRI tomorrow, and LP on Friday. I am Ssooooo not happy about the LP (I had a TERRIBLE time with mine), but they are insisting.

Please keep her in your thoughts.

Cherie

Oh I am so so sorry, Cherie..:( Only 13..:eek:.. I hope not..sheesh.. Your biggest fear..:mad:

All the Hugs and prayers heading to you right now.:hug::hug:

Ack Cherie. I really hope it's not MS :( You're both in my prayers.

Oh Cherie,

I so hope it is not MS or anything serious. Hope the LP goes ok. I did not have a problem with mine.

I don't know what to say, Cherie.

I really hope it's not MS, she is just so young. Give her a :hug:from me and I'm sending you one too :hug:

I will be :smileypray: she doesn't have MS.

I dont know what is a LP Cherie, but I will pray, first, for her not having trouble at her tests, and second, for her not having MS...

Third prayer will be, in case she has it, God please, make her strong as her mom :hug:

:smileypray::smileypray::smileypray::smileypray:

Keep us posted !!!

God Bless you and your daughter !!!! :hug:

Cherie, you'd be one of the first to tell us that many other conditions have symptoms that mimic MS, but I understand how you feel. I would be terrified if it was my own daughter who had symptoms like these.

It is however, good to know that she has a pediatric neurologist to oversee her care, and that appropriate investigations have been ordered.

Please know that I'm praying for you and your daughter; praying that there's a simple explanation; praying that she soon starts to feel better.

Sending hugs for your daughter Cherie, and loaning you my shoulder to lean on.

I'll be keeping you both in my prayers Cherie. I truly hope it isn't MS. :(

Thanks for your support.

You are right, Koala, and I have thought that way all the way through.

At first I thought a virus (like meningitis), and took her to a local Hospital. She had no fever or other signs of a virus, so they ruled that out right away and sent us home with the instructions that "if she didn't improve over the weekend, bring her back."

I happened to have a MS Specialist appt on Monday, and mentioned to her my daughter's symptoms. She jumped on it RIGHT away, and said "GET HER INTO CHILDREN'S HOSPITAL NOW!!". I took her the next day.

There was a team of specialists that assessed her all day; 4 doctors in all. The pediatrician neurologist gave me her business card at the end and said "I want to personally follow your daughter". Please call me next week to let me know if things are not better.

That's how it all started, and things have only gotten worse since then. I've been researching like mad to see if her symptoms fit anything else at all . . . and had come to the conclusion that fibromyalgia fit quite nicely. :D Her doctor actually got very annoyed at me last week, and told me to "stop looking on the internet", "you know these things take time, hopefully a LONG time". That was the first time I seriously considered MS. :(

She hasn't been at school for more than a few hours over the past three weeks. The pediatrician neuro said it has to be dealt with now. :(

I'm taking her for the MRI tomorrow, and her dad is taking her for the Spinal Tap. I can't handle that part. :eek:

Thanks again,
Cherie

OH Cherie!! Nightmare doesn't even seem like a big enough word for this, is it? I'm SOOO Sorry. When I read the subject line, I found tears in my eyes and a lump in my throat.

I don't have words for you....I can't even begin to imagine everything that must be going on inside of you...

Please keep us posted and know that we are all wishing and praying for you and your daughter...

much love,

keri